This is a feasibility study to evaluate whether it is possible to conduct a larger study to evaluate whether providing psychological support to carers of people with MS is effective in reducing carer strain. Whilst not all carers experience distress as a result of their caring duties, some do. This study is testing the use of Acceptance and Commitment Therapy (ACT) in a self-help format. Participants will learn about and use ACT by reading a book provided to them by the study. One group will receive the ACT book, another will receive the same book alongside weekly telephone support to use the book, and a third group will act as a control group and therefore will not have extra support. Participants are allocated to the groups based on chance (a computer will decide group allocation). Participants will complete questionnaires before group allocation, and then again 3 months after they were allocated to a group, and one final time 6 months after group allocation. Those who receive the self-help book will get sent chapters each week for 8 weeks. The groups will be compared on scores from the questionnaires and complete feedback interviews with a subgroup of those who receive the book, to gain feedback about their experiences of the study.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
SUPPORTIVE_CARE
Masking
SINGLE
Enrollment
24
Self-Help Intervention Workbook using an Acceptance and Commitment Therapy approach
Self-Help Intervention Workbook using an Acceptance and Commitment Therapy approach alongside weekly telephone support calls
University of Nottingham
Nottingham, Nottinghamshire, United Kingdom
ZBI
Zarit Burden Interview as a measure of carer strain
Time frame: 3 months
ZBI
Zarit Burden Interview as a measure of carer strain
Time frame: 6 months
MCSI
Modified Carer Strain Index as a measure of carer strain
Time frame: 3 months, 6 months
CAREQOL-MS
CAREQOL- MS is a health-related quality of life scale designed for carers of people with MS
Time frame: 3 months, 6 months
AAQ-II
The Acceptance and Action Questionnaire is a measure of experiential avoidance and psychological inflexibility, consistent with the ACT model
Time frame: 3 months, 6 months
CompACT
The Comprehensive Assessment of Acceptance and Commitment Therapy measures important processes of ACT
Time frame: 3 months, 6 months
Service Use Questionnaire
The service use questionnaire will measure the frequency in which participants access health and social care services
Time frame: 3 months, 6 months
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