The primary purpose of this pilot study is to evaluate the feasibility and acceptability of a Mobile Digital Solution in monitoring and collecting symptom burden data. The proposed study is meant to be the preparatory work for an intervention study to test the effect of Mobile Digital Solutions on improving patient outcomes by prompting early interventions for symptom relief and support of patient and family caregiver quality of life (QOL).
Demographic information and patient-reported symptoms will be collected from study participants through a mobile health application called CancerLife that they can download (FREE) from their mobile device app store (Android or iOS). Participants will be asked to broadcast their emotional and physical status through a list of symptom list within the app as well as how that symptom is impacting their quality of life and activities of daily living. This data will be collected inside the application and display in easy to understand pie charts. Participants will also have the option to broadcast their entry to their social network. Since the objective of the current feasibility study is to evaluate the feasibility and acceptability of a Mobile Digital Solution in monitoring and collecting symptom burden and QOL data, the investigators will include a standard validated instrument (FACT-G: Functional Assessment of Cancer Therapy - General) as part of this study. Participants will be asked to complete the FACT-G after initial registration and weekly for up to 4 weeks. Participants will receive electronic mail messages with a link to CancerLife weekly as a reminder to access the website.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
HEALTH_SERVICES_RESEARCH
Masking
NONE
Enrollment
30
CancerLife is a mobile digital solution that allows patients to broadcast their health status inside a private invitation only group, text, email or publicly in Facebook or Instagram. By doing, so the patient collects his/her own patient-reported outcomes data and then share this data with their doctor or care team.
John Wayne Cancer Institute at Providence Saint John's Health Center
Santa Monica, California, United States
Feasibility/ Participation Rate
number of individuals who participate in the study divided by the number of individuals who opened the link
Time frame: 4 weeks
Open Rate
number of individuals who open the link divided by total number of individuals reached by the advertisement
Time frame: 4 weeks
Refusal rate
number of individuals who declined to participate divided by the number of individuals who opened the link
Time frame: 4 weeks
Retention rate
number of mission data divided by total number of items available
Time frame: 4 weeks
Rate of missing data
number of mission data divided by total number of items available
Time frame: 4 weeks
Participant Satisfaction
describe the usability, satisfaction, and desirability of the Mobile Digital Solution using a patient experience survey at the end of the study
Time frame: 4 weeks
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