The iPeer2Peer program matches teens with arthritis to an older mentor who has learned to manage their arthritis well and can support them emotionally and socially. This study will compare two groups of teens: those who are in the iPeer2Peer Program and those in the control group (no mentor).
Arthritis is a common childhood illness that makes everyday activities hard for young people. It is a long-lasting illness that can make you feel pain, tired and emotionally upset. This can make it hard for children and teens to see friends and do the activities that they like. The goal of this project is to find out if the newly developed peer mentoring program called iPeer2Peer helps teens with arthritis take better care of their illness and feel more connected to other people with arthritis. The iPeer2Peer program matches teens with arthritis to an older mentor who has learned to manage their arthritis well and can support them emotionally and socially. This study will compare two groups of teens: those who are in the iPeer2Peer Program and those in the control group (no mentor).
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
TREATMENT
Masking
SINGLE
Enrollment
164
10 sessions of 20-30 minute Skype calls conducted over 5-12 weeks.
The control group will receive standard care but without the iPeer2Peer program.
Alberta Children's Hospital
Calgary, Alberta, Canada
BC Children's Hospital
Vancouver, British Columbia, Canada
The IWK Health Centre
Halifax, Nova Scotia, Canada
Children's Hospital - London Health Sciences
London, Ontario, Canada
TRANSITION-Q (measuring change)
14-item measure of self-management skills that is both reliable (internally consistent, test-retest) and valid (face, construct and content validity)
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
PedsQL Arthritis Module (measuring change)
Health-related quality of life
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
PROMIS Pain Interference (measuring change)
Pain
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
Screen for Child Anxiety Related Disorders (measuring change)
Emotional distress
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
Center for Epidemiologic Studies Depression Scale Revised (measuring change)
Emotional distress
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
Medical Issues, Exercise, Pain and Social Support Questionnaire (measuring change)
Disease knowledge
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
Children's Arthritis Self-Efficacy (measuring change)
Self-efficacy
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Children's Hospital of Eastern Ontario (CHEO)
Ottawa, Ontario, Canada
The Hospital for Sick Children
Toronto, Ontario, Canada
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
PROMIS Pediatric Peer Relationship Scale (measuring change)
Perceived social support
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
AQoL-6D, interview (measuring change)
Cost utility analysis
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
Health service use and costs (measuring change)
Cost utility analysis
Time frame: Baseline; Immediately following interview (approximately 12 weeks after baseline); 6-months post
Mentor Behavior Scale (measuring change)
Mentor quality
Time frame: Post-Intervention (approximately following 12 weeks of calls)
PROMIS Adult Profile (measuring change)
For mentors only: mentor physical and emotional symptoms
Time frame: At beginning of study and at end of study (approximately 3 years later)
PROMIS Satisfaction with Social Roles and Activities (measuring change)
For mentors only: perceived social role satisfaction
Time frame: At beginning of study and at end of study (approximately 3 years later)
Chronic Disease Self-Efficacy Scale (measuring change)
For mentors only: self-efficacy
Time frame: At beginning of study and at end of study (approximately 3 years later)
Mentor interaction form
Record of interactions with mentees
Time frame: Following completion of each mentee's calls (approximately following 12 weeks of calls)