The DENACAPST programme represents an important initiative to provide near nation-wide roll-out of an important cancer surveillance program for childhood cancer survivors. The program is based on internationally recognized standards in cancer surveillance, which were developed by the International Guideline Harmonization Group (IGHG) with support of all relevant stakeholders in cancer survivorship research and clinical work in Europe, Canada and the United States and recognized French recommendations about breast screening for women at high risk of cancer. With this programme, French centers organized themselves to provide to childhood cancer survivors adequate medical attention, which includes close medical surveillance for breast/thyroid cancer where appropriate, based on adequate risk stratification. The aim of the study is to analyze if the recommendations about breast and thyroid cancer screening are followed in this population and secondly to provide more informations about these second cancers and about the screening.
Every center which has patient at risk can participate. Main inclusion criteria : French childhood cancer survivor (5 years or more of delay with the treatment) - becoming adult - with a past history of radiotherapy at the age of 20 years or before, with a significant dose irradiation on the thyroid or the breast The inclusion of patients are validated by one team Thyroid screening programme is based on US each 2 years Breast screening programme is based mainly on MRI each year
Study Type
OBSERVATIONAL
Enrollment
2,000
Charlotte Demoor-Goldschmidt
Villejuif, France
RECRUITINGfollow of cancer screening recommendations
number of persons at risk found percentage of persons at risk contacted who answered percentage of persons contacted, who answered, who accepted the screening
Time frame: 2 years
description of thyroid cancer screening
evaluation of the programme
Time frame: 2 years
description of breast cancer screening
evaluation of the programme
Time frame: 2 years
description of second cancers
analyze of the histological data
Time frame: 2 years
psycho social analyze
evaluated by auto-questionaries :initial / final and comparison with persons who accepted to answer but who did not accept the screening
Time frame: 2 years
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