Study Design A prospective observational, cross-sectional epidemiological study in U.S. site-based clinical practice settings. 30 sites will enroll approximately 300 patients Participating patients - or their caregiver in the case of patients under the age of 18 - will be consented to participate. Physicians complete a retrospective chart review on each enrolled patient. Patients will complete a one-time study questionnaire.
Study recruitment was stopped due to difficulty in enrolling the targeted number of patients on March 21, 2018. Subjects currently enrolled into the study have completed the study as per protocol. There were no safety concerns involved in the decision to stop enrollment.
Study Type
OBSERVATIONAL
Enrollment
11
Benefix
Alprolix
Xyntha and other standard half-life agents
University of Florida College of Medicine
Gainesville, Florida, United States
Alliance for Childhood Diseases, dba Hemophilia Treatment Center of Nevada
Las Vegas, Nevada, United States
Cook Children's Medical Center
Fort Worth, Texas, United States
Resource Utilization Pattern
Time frame: From baseline up to end of study (6 months)
Dosing Pattern
Time frame: From baseline up to end of study (6 months)
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