The goal of this study is to get a better understanding of the skin condition, Hidradenitis Suppurativa, and to find out how the disease affects quality of life. The investigators hope this information will help improve treatment for this skin condition.
The goal of this study is to get a better understanding of the skin condition, Hidradenitis Suppurativa, and to find out how the disease affects quality of life. The investigators will utilize a compilation of validated questionnaires including the Beck Depression Inventory form, Dermatology Life Quality Index (DLQI), Skindex, SF-36 health survey, the Quality of Life Enjoyment and Satisfaction Questionnaire- short form (Q-LES-Q-SF) and the Employment/Productivity Health Economic Questionnaire as well as other relevant clinical data. The investigators will additionally collect a modified Hidradenitis Suppurativa Lesion, Area, and Severity Index (HS-LASI) (or other appropriate disease severity score as determined by the team) from the physician of each enrollee. The investigators hope this information will help improve treatment for this skin condition.
Study Type
OBSERVATIONAL
Enrollment
400
Montefiore Medical Center
The Bronx, New York, United States
Skin-related quality of life
Quality of life as measured using standardized Dermatology Quality of Life Index
Time frame: Baseline
Presence and severity of depression
Presence and severity of depression as measured using standardized Beck Depression Inventory
Time frame: Baseline
Skin-related of life
Quality of life as measured using standardized SkinDex questionnaires
Time frame: Baseline
Subject-reported subject health
Subject-reported subject health as measured using the standardized SF-36 questionnaires
Time frame: Baseline
Degree of enjoyment and satisfaction experienced by subjects in daily functioning.
Degree of enjoyment and satisfaction experienced by subjects in various areas of daily functioning as measured by the standardized Quality of Life Enjoyment and Satisfaction Questionnaire-short form.
Time frame: Baseline
Employment and economic productivity
Self-reported employment and economic productivity as measured by a standardized health economic questionnaire
Time frame: Baseline
Change in quality of life
Change in quality of life as measured using standardized Dermatology Quality of Life Index after treatment initiation
Time frame: At 6 months
Change in presence and severity of depression
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Change in presence and severity of depression as measured using standardized Beck Depression Inventory after treatment initiation
Time frame: At 6 months
Change in quality of life
Change in quality of life as measured using standardized SkinDex questionnaires after treatment initiation
Time frame: At 6 months
Change in subject-reported subject health
Change in subject-reported subject health as measured using standardized SF-36 questionnaires after treatment initiation
Time frame: At 6 months
Change in degree of enjoyment and satisfaction experienced by subjects in various areas of daily functioning
Change in degree of enjoyment and satisfaction experienced by subjects in various areas of daily functioning as measured by the standardized Quality of Life Enjoyment and Satisfaction Questionnaire-short form after treatment initiation
Time frame: At 6 months
Change in self-reported employment and economic productivity
Change in self-reported employment and economic productivity as measured by a standardized health economic questionnaire after treatment initiation
Time frame: At 6 months