This is a study to assess the feasibility and acceptability of implementing a music therapy intervention for caregivers of hospitalized patients who are referred to inpatient hospice.
Caregivers are at high risk for stress, poor quality of life (QOL), and burnout. As a patient nears death, common themes for caregivers include anxiety and emotional distress from impending death, anticipatory grief, and acceptance of loss, which negatively impact the caregiver QOL. Investigators propose to conduct a pilot project to investigate music therapy impact on caregiver distress for caregivers of imminently dying hospitalized patients referred to hospice. Upon enrollment, caregivers will be provided a music therapy intervention with legacy-building components, and will be asked to complete 3 brief questionnaires on distress and quality of life before and after the music therapy to assess their response to the intervention. The overall aim is to reduce caregiver distress and optimize QOL.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
20
Music therapy is tailored to subject preference. Examples are active music-making, supportive listening, and includes opportunities for legacy building to decrease caregiver distress and promote self-care.
Mayo Clinic
Rochester, Minnesota, United States
Pearlin role overload measure (ROM)
4-item self-administered measure of caregiver stress
Time frame: Baseline to 6 months
Linear Analogue Self-Assessment (LASA)
10-item self-report of general measures of quality of life (QOL)
Time frame: Baseline to 6 months
Patient Health Questionnaire for Depression and Anxiety (PHQ-4)
4-item self-administered screening tool that combined two validated two-item screeners for depression and anxiety
Time frame: Baseline to 6 months
Music Therapy Program Survey
Survey to assess satisfaction regarding the therapy service provided
Time frame: Up to 72 hours after intervention
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