HCPs will complete questionnaires about their patients with Cerebral Palsy (CP) and invite parents/caregivers of these patients to fill in questionnaires as well. Questionnaires include questions on individualized treatment, nutritional profile and management, and patient characteristics.
Coordinating health care professionals (HCPs; e.g. paediatric neurologists, physiotherapists) in different centres across different countries will be asked to participate in this cross-sectional study. A) for the HCP to fill out a questionnaire about their CP child, related to general subject characteristics, motor function, co-morbidities, type of therapies, anthropometry, feeding mode and nutritional status; and B) for parents (/legal representatives) to receive and fill out questionnaires about their CP child and themselves, related to general subject characteristics, motor function, co-morbidities, type of therapies, anthropometry, feeding mode and nutritional status, participation and (their own) quality of life. If parents (/legal representatives) agree to "A)", but not "B)" then a subject will still enter the study, but without the parental assessment.
Study Type
OBSERVATIONAL
Enrollment
499
Fakultní nemocnice v Motole
Prague, Czechia
Attikon University General Hospital
Quantify current CP characteristics 1 (general subject characteristics):
Using questionnaires to quantify current CP characteristics with respect to: \- General subject characteristics (e.g. Sex, Birth weight \[g\], Type of CP motor disorder \[category\]
Time frame: Data collected retrospectively, from within 12 months of entering the questionnaire
Quantify current CP characteristics 2 (anthropometry):
Using questionnaires to quantify current CP characteristics with respect to: Anthropometry: length \[cm\]; weight \[grams\] and BMI (kg/m2)
Time frame: Data collected retrospectively, from within 12 months of entering the questionnaire
Quantify current CP characteristics 3 (motor function)
Using questionnaires to quantify current CP characteristics with respect to: Motor function (GMFCS \[category\]; GMFM measurement type \[GMFM-86/GMFM-88\]
Time frame: Data collected retrospectively, from within 12 months of entering the questionnaire
Quantify current CP characteristics 4 (comorbidities)
Using questionnaires to quantify current CP characteristics with respect to: Comorbidities: epilepsy, cognitive function, GI problems \[categories\]
Time frame: Data collected retrospectively, from within 12 months of entering the questionnaire
Quantify current CP characteristics 5 (therapies)
Using questionnaires to quantify current CP characteristics with respect to: Type and frequency of physical/occupational therapy \[type, number of hours per day /days per week\]
Time frame: Data collected retrospectively, from within 12 months of entering the questionnaire
Quantify current CP characteristics 6 (feeding mode)
Using questionnaires to quantify current CP characteristics with respect to: Feeding mode and/or problems (tube feeding \[yes/no\], type of tube feeding etc)
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.
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Bethesda Children Hospital Budapest
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AO Sant'Orsola - Malpighi, Policlinico
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ASST degli Spedali Civili di Brescia
Brescia, Italy
Fondazione IRCCS Istituto Neurologico "Carlo Besta"
Milan, Italy
AOU di Modena - Policlinico
Modena, Italy
Roessingh centrum voor Revalidatie
Enschede, Netherlands
Medical university hospital of Gdansk
Gdansk, Poland
Szpital Kliniczny im. Heliodora Święcickiego Uniwersytetu Medycznego im. Karola Marcinkowskiego w Poznaniu
Poznan, Poland
...and 10 more locations
Time frame: Data collected retrospectively, from within 12 months of entering the questionnaire
Quantify current CP characteristics 7 (nutritional status)
Using questionnaires to quantify current CP characteristics with respect to: Nutritional status (HCP and parent perspective on nutritional status, concerns \[yes/no\])
Time frame: Data collected retrospectively, from within 12 months of entering the questionnaire