Adolescents with cerebral palsy (CP) present important limitations for the performance of daily living activities. The aims of the study is to evaluate the feasibility and effects of an intensive goal training protocol for adolescents with CP. He hypothesize that adolescents submitted to the studied protocol will present improvements in performance and satisfaction of prioritized functional goals.
We will conduct a feasibility study to assess the implementation and the possible effects of an intensive individualized goal training with adolescents with CP. Adolescents will select up to 5 functional goals to be trained during a 2 weeks, 3 hour-daily training, totalling 30 hours across 2 weeks. Moreover, they will be asked to daily practice these activities at home along the intervention period.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
TREATMENT
Masking
NONE
Enrollment
20
Intensive goal training : 30 hours during 2 weeks
Associação Mineira de Reabilitação
Belo Horizonte, Minas Gerais, Brazil
RECRUITINGChange in Functional Goals
Canadian Occupational Performance Measure (COPM) (ranging 1-10; higher values, better outcomes)
Time frame: 1 month before intervention; pre-intervention; immediate post-intervention, 3-month follow-up
Change in Daily functioning- Self-Care
Pediatric Evaluation Disability Inventory (PEDI) self-care: ranging from 0-63; higher values, better outcomes
Time frame: 1 month before intervention; pre-intervention; immediate post-intervention, 3-month follow-up
Change in Daily functioning- Mobility
Pediatric Evaluation Disability Inventory (PEDI) mobility: ranging from 0-55; higher values, better outcomes
Time frame: 1 month before intervention; pre-intervention; immediate post-intervention, 3-month follow-up
Change in Manual dexterity
Box \& Blocks Test (BBT)- number of blocks that are transported during 1 minute (there is no established max-min, higher values, better outcome)
Time frame: 1 month before intervention; pre-intervention; immediate post-intervention, 3-month follow-up
Change in Gross motor function
Gross Motor Function Measure (GMFM): gross motor function abilities assessed in activities from 5 domains: lying and rolling; seating; crawling and kneeling; standing; walking, running and jumping. higher scores, better outcome
Time frame: 1 month before intervention; pre-intervention; immediate post-intervention, 3-month follow-up
Change in Participation at home
Participation Environment Measure: Children and Youth (PEM-CY): Structured questionnaire to assess the frequency and level of involvement in daily living tasks (home scale will be used) higher scores, better outcomes
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Time frame: 1 month before intervention; pre-intervention; immediate post-intervention, 3-month follow-up
Change in Participation in household activities
Children´s Helping Out: Responsibility, Expectations and Supports (CHORES): structured questionnaire to assess the frequency and level of assistance in household activities: higher scores, better outcomes
Time frame: 1 month before intervention; pre-intervention; immediate post-intervention, 3-month follow-up