Information and Accompaniment of Siblings Following the Announcement of a Cancer in Pediatric Hematology.

University Hospital, Lille7 enrolled

Overview

The primary objective is to evaluate the experience with the information received on the disease by the healthy brothers and sisters of childrens with malignant haemopathy at the Centre Hospitalier Régional et Universitaire of Lille

Study Type

INTERVENTIONAL

Allocation

Purpose

OTHER

Masking

NONE

Enrollment

Conditions

Malignant Haemopathy

Interventions

semi-directive interviewOTHER

semi-structured interview conducted by a clinical psychologist

Eligibility

Sex: ALLMin age: 6 YearsMax age: 12 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: * Children from 6 to 12 years old * Brother or sister of a child: O has malignant haemopathy O follow-up in the pediatric hematology department in Lille, O diagnosed from 6 weeks to 1 year before maintenance of the healthy subject included * whose parents are able to understand and sign voluntarily informed consent * Affiliated to a social security scheme * Ability to understand and answer questions alone during the semi-structured interview Exclusion Criteria: * Child under 6 years or over 12 years * Subject with a pathology that may interfere with the course of the study, according to the investigator's assessment * Absence of the informed consent of one of the parents and / or the legal representative * Refusal of participation of the subject

Locations (1)

Hôpital Jeanne de Flandres, CHU

Lille, France

Outcomes

Primary Outcomes

Level of satisfaction and characteristics of information received about the disease by healthy siblings of children with hematological malignancies

Measure Qualitative Interviews by Grounded theory. The experience with the information received on the disease by the healthy brothers and sisters of childrens with malignant haemopathy. Assessment of the level of satisfaction with the information received. The information will be characterized according to three dimensions: the framework (by whom, with whom, where, when, how) and the content of the information

Time frame: 1 year

Secondary Outcomes

Explore the representations of the disease in healthy siblings

The representation of the disease is the set of personal beliefs of an individual about the disease. It allows him to make sense of the disease. These data will be analyzed during the semi-structured interview

Time frame: 1 year

Evaluate their information and support needs following the announcement of the disease

information and support needs gathered during the semi-structured interview

Time frame: 1 year

Identify the possible psychic and social consequences of the disease in these healthy subjects

to identify during the semi-directive interview the elements informing about the social behavior and the psychic state of the subject included, expressed spontaneously by the subject, directly (in the speech, for example "I am sad") or indirectly (by attitude, for example: crying)

Time frame: 1 year

Data from ClinicalTrials.gov

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