This study evaluate use of a translated Norwegian version of the Edinburgh cognitive and behavioral amyotrophic lateral sclerosis screen (ECAS-N) as an early predictor in car-driving, working and use of advanced life-prolonging therapy.
Cognitive impairment is present in about 30-50% of the patients with amyotrophic lateral sclerosis (ALS). Screening of cognitive and behavioral impairment is a distinct recommendation in ALS-specific health care. However, knowledge in how cognitive impairment shall influence health-care professionals' information given to patients and in decision making is lacking. One of the major challenges in ALS management is the decision-making on advanced therapy. There is a lack of knowledge in how cognitive impairment in ALS shall be interfere on complex medical treatment that will affect quality of life or life itself. This means significant implications not only to the ALS patient and the community, but also the family and especially the spouse. Thus, further investigation of the ECAS-N and its potential in clinical use is needed. The scale may contribute a more proactive treatment better tailored to individual needs. The objective is to evaluate if the ECAS-N can be applied as an early predictor in car-driving, working and use of advanced life-prolonging therapy
Study Type
OBSERVATIONAL
Enrollment
31
Haukeland University Hospital
Bergen, Norway
Clinical Dementia Rating (CDR)
We will use the total CDR score (minimum score = 0, maximum score = 18). Low scores indicate less problems than high scores.
Time frame: 8 months
Clinical Dementia Rating (CDR)
We will use the total CDR score (minimum score = 0, maximum score = 18). Low scores indicate less problems than high scores.
Time frame: 4 months
Clinical Dementia Rating (CDR)
We will use the total CDR score (minimum score = 0, maximum score = 18). Low scores indicate less problems than high scores.
Time frame: 3 years or until death
Ability in car-driving
We will use a categorical variable (yes or no) and time of change to reduced function.
Time frame: 8 months
Ability in car-driving
We will use a categorical variable (yes or no) and time of change to reduced function.
Time frame: 4 months
Ability in car-driving
We will use a categorical variable (yes or no) and time of change to reduced function.
Time frame: 3 years or until death
Working ability
We will use a categorical variable (yes or no) and time of change to reduced function.
Time frame: 8 months
Working ability
We will use a categorical variable (yes or no) and time of change to reduced function.
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Questions related to work situation and car driving
Time frame: 4 months
Working ability
We will use a categorical variable (yes or no) and time of change to reduced function.
Time frame: 3 years or until death
Use of Advanced life-prolonging therapy
We will use a categorical variable (yes or no) and time of change to reduced function.
Time frame: 8 months
Use of Advanced life-prolonging therapy
We will use a categorical variable (yes or no) and time of change to reduced function.
Time frame: 4 months
Use of Advanced life-prolonging therapy
We will use a categorical variable (yes or no) and time of change to reduced function.
Time frame: 3 years or until death