This is a completely text-messaging based study and all data will be collected via surveys administered on a mobile phone. For this study, we will gather and analyze data on changes in body weight over a 6-month interval in individuals aged 12 and over. This will help us learn more about the normal variation in weight, over time, in the PWS population.
The incidence and natural history of several PWS symptoms are poorly defined. In this text-messaging based study we will gather and analyze data on changes in body weight over a 6-month interval, in individuals aged 12 and over. We would like to learn about the normal weight variation in the PWS population. We anticipate that this study will inform future clinical trials for hyperphagia/obesity related therapies, and provide a basis for understanding how well potential therapies are working. For this study, there will be no intervention and the all data will be collected via texting.
Study Type
OBSERVATIONAL
Enrollment
180
weekly weight data collection for six months
Remote
Walnut, California, United States
Percent of Change in Weight
weekly weight data will be collected via text for 6 months
Time frame: baseline and 6 months
Percent of Change in BMI
weekly weight and height data will be collected via text for 6 months
Time frame: baseline and 6 months
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