Targeted Inpatient Navigation to Improve Care for Minority Children and Families

Seattle Children's Hospital60 enrolled

Overview

The overall goal of this research is to evaluate a new program designed to address basic human needs, create a safe and supportive environment for families, and help families build skills and confidence for navigating the health care system. Specifically, we aim to pilot test the feasibility and acceptability of the Targeted Inpatient Navigation (TNav) program for families of low income, minority hospitalized children.

Study Type

INTERVENTIONAL

Allocation

Purpose

HEALTH_SERVICES_RESEARCH

Masking

NONE

Enrollment

Conditions

Hospitalized Children

Interventions

Family Bridge ProgramBEHAVIORAL

Families receive Family Bridge Program services which include orientation to the hospital, concrete needs assessment, communication preferences assessment, communication coaching, follow-up during the hospital stay, and a follow-up phone call after discharge.

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Caregiver ≥18 years of age, with a hospitalized child \<18 years old * Preferred language of English, Spanish and Somali * child with Medicaid insurance or no insurance * child with self-reported (or parent-reported) minority race/ethnicity * within 3 days of admission/ transfer to the medical unit on a general medicine service of a resident team Exclusion Criteria: * Admission for suspected child abuse * Involvement of Child Protective Services at time of admission * Admission for primary mental health condition, including intentional ingestion and eating disorder * Family already enrolled in longer-term navigation services

Locations (1)

Seattle Children's Hospital

Seattle, Washington, United States

Outcomes

Primary Outcomes

Program acceptability to caregivers--qualitative

Program acceptability will be determined qualitatively, on the basis of thematic content analysis of semi-structured interviews with enrolled caregivers

Time frame: 4-6 weeks after discharge

Program feasibility

Ability to deliver program elements as planned, calculated as the number of Family Bridge services delivered to a family divided by the services available to that family.

Time frame: Calculated for each family after program involvement is complete, generally 1 week after discharge.

Program acceptability to providers--qualitative

Program acceptability will be determined qualitatively, on the basis of thematic content analysis of semi-structured interviews with the doctors, nurses, social workers and care coordinators who were involved in their hospital care.

Time frame: Once per month, every month that they care for an enrolled family, up to 6 months

Secondary Outcomes

Cultural Distance Scale

4 items measuring perceived similarity or difference in norms and values between family and medical providers. Each of the 4 items is scored on a Likert scale from 1 to 6, with higher values reflecting greater difference. The total scale score is the average of the 4 responses, on a scale from 1 to 6.

Time frame: Enrollment and 2-4 weeks after discharge.

Barriers to Care Questionnaire

20 items measuring perceived barriers to medical care, with 4 sub-scales, each scored and reported separately: System as a whole, Skills barriers, Expectation barriers, and Knowledge barriers. Each subscale was scored 0-100, with higher scores indicating greater barriers.

Time frame: Enrollment and 2-4 weeks after discharge.

Data from ClinicalTrials.gov

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