This study is designed as a pilot test of the YESS! web-based intervention for adolescents with epilepsy. One hundred twenty participants will be given access to the intervention for a period of eight weeks. The investigators are testing the feasibility and acceptability of the the study procedures, measures and of the intervention itself. The study also evaluats the potential for impact on the users.
YESS! is a web-based self management program developed to enhance the motivation and skills of youth with epilepsy. This clinical trial uses a pre-test, post-test design where all consenting participants are given access to the intervention.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
TREATMENT
Masking
NONE
Enrollment
120
Web based self-management education
University of Minnesota
Minneapolis, Minnesota, United States
Feasibility of recruiting and enrollment procedures and
Measure the extent to which the recruitment and enrollment procedures meet the study aims in terms of number of participants log in to the intervention
Time frame: 8 weeks after getting access to the web intervention
Acceptability of intervention website users
and the extent to which users (study subjects) find the intervention easy to use, enjoyable to use, useful, engaging. Acceptability is a multifaceted and complex concept. As such it it is best examined as a system of interacting attributes.
Time frame: 8 weeks after getting access to the web intervention
Participant Well-being
measures of overall well-being (EPOCH wellbeing meausre)
Time frame: 8 weeks after getting access to the web intervention and 8 weeks after that.
Participant Quality of Life
measure quality of life in epilepsy (QoLiE-10)
Time frame: 8 weeks after getting access to the web intervention and 8 weeks after that.
self-management behavior profile
measure the frequency of self management behaviors (taking medications, making clinic appointments, speaking with doctor/nurse/teacher) using a measure developed for this study
Time frame: 8 weeks after getting access to the web intervention and 8 weeks after that.
self-management motivation profile
measure the motivations (autonomous and extrinsic reasons for engaging in self management) using an adapted version of a standardized measure of motivation
Time frame: 8 weeks after getting access to the web intervention and 8 weeks after that.
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.