Angelman & Rett Syndrome: Interaction and Communication

N/ACompletedNCT03720028

Universitaire Ziekenhuizen KU Leuven20 enrolled

Overview

We aim to describe the communicative and sensory profile of children with Angelman syndrome or Rett syndrome and their use of augmentative and alternative communication. In addition, parents are surveyed regarding parent-child interaction and access to communication support.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Behavior, Child Parent-Child Relations Communication

Interventions

ObservationBEHAVIORAL

Describe communication and sensory profile using standardized tests and observations.

Parental experiencesBEHAVIORAL

Survey parents' experiences with parent-child interaction and augmentative and alternative communication.

Eligibility

Sex: ALLMin age: 1 YearMax age: 14 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Angelman or Rett syndrome Exclusion Criteria: * none

Locations (1)

Katholieke Universiteit Leuven

Leuven, Vlaams-Brabant, Belgium

Outcomes

Primary Outcomes

Communication profile

Scores on language tests

Time frame: 1 day One-time measurement

Parent interaction

Scores on social tests

Time frame: 1 day One-time measurement

Data from ClinicalTrials.gov

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