Adolescents with type 1 diabetes face particular challenges related to having a chronic illness that requires daily intensive self-management and medical follow-up during a period when their social, developmental, educational, and family situations are in flux. When transitioning from pediatric to adult care, over a third of youth have a care gap of \>6 months. During this vulnerable period youth are at risk for acute life-threatening complications such as diabetic ketoacidosis, and for poor glycemic control, which confers an increased risk of chronic diabetes complications. Gaps in care may be a result of deficiencies in transition processes causing some young people to be poorly prepared for adult care and dissatisfied with the transition process. Ineffective transition can lead to decreased frequency of diabetes visits and an increased risk of adverse events in young adulthood. Further, risk factors such as psychiatric comorbidity and behavioural problems in adolescents with type 1 diabetes are associated with poor outcomes in early adulthood. Quality improvement initiatives can be designed to optimize care processes such as referral systems to adult diabetes providers. Our overall objective is to optimize care and outcomes for youth with diabetes as they transition to adult care. Specific Aim 1: To improve glycemic control in youth around the time of transition from pediatric to adult diabetes care Specific Aim 2: To evaluate the fidelity and quality of a quality improvement intervention designed to improve transition care processes and to identify contextual factors associated with variation in outcomes.
Study Type
INTERVENTIONAL
Allocation
NON_RANDOMIZED
Purpose
HEALTH_SERVICES_RESEARCH
Masking
NONE
Enrollment
484
Teams from each of the participating sites will attend the webinars. Each site will share an example of a QI initiative that they are executing and describe the success and challenges.
McMaster Children's Hospital
Hamilton, Ontario, Canada
Children's Hospital, London Health Sciences Centre
London, Ontario, Canada
Markham Stouffville Hospital, Clinic 4
Markham, Ontario, Canada
Trillium Health Partners
Mississauga, Ontario, Canada
The Hospital for Sick Children
Toronto, Ontario, Canada
HbA1c
Hemoglobin A1c
Time frame: HbA1c value up to 12 months after the final pediatric visit.
Number of Diabetes-related admissions, ED visits, death
The occurrence of at least one diabetes-related admissions or emergency department visit or death
Time frame: number of occurrences up to12 months after the final pediatric visit.
Time from the final pediatric visit to the first adult diabetes visit
identified using physician service claims and defined as the first diabetes office visit by an adult endocrinologist, internist, or family physician
Time frame: Time in months up to 12 months after the final pediatric visit
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