Antenatal Palliative Care

Hospices Civils de Lyon9 enrolled

Overview

In France, according to current legislation, termination of pregnancy could be performed without any upper gestational age limit, if there is a strong probability that the fetus will be affected by a particularly severe and incurable disease. When there is a lethal fetal diagnosis most of parents wish to terminate their pregnancy. However, and despite some medical resistance a few of them do wish to continue pregnancy. In these situations, palliative care seems to be a good way to prepare to welcome the child and surround him until death. The aim of the study is to describe parents' experience for a better understanding and a better care.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Fetal Death Fetal Anomaly

Interventions

Semi-structured interviewsBEHAVIORAL

The purpose of this study is to describe the experience of pregnancy by parents who have chosen to carry to term despite a lethal fetal diagnosis. Therefore, semi-structured interviews will be conducted to explore the links between context, feeling, involvement, decision and actions during pregnancy, whether within the couple or in its environment.

Eligibility

Sex: ALLMin age: 18 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: * The woman must be between the ages of 18 and 50 and the adult, * Participants must have received the information and not have objected to participating in the study, * the lethal / adverse short-term prognosis of the fetal pathology must have been confirmed by a committee of experts (CPDPN), * The choice to continue the pregnancy should have been clearly expressed, * The birth of the child should not be older than 24 months. * The child's death must be more than 6 months old (or not have occurred) Exclusion Criteria: * Non-mastery of the French language, * Measure of legal protection of one of the members of the couple (guardianship, trusteeship, ...), * Severe psychiatric or neurological disorders inducing significant cognitive impairment.

Locations (3)

Équipe de psychopathologie périnatale - Service de psychopathologie du développement - Centre Hospitalier Femme-Mère-Enfant - Hospices Civils de Lyon

Bron, France

Service de gynécologie obstétrique - Hôpital de la Croix Rousse

Lyon, France

Service de gynécologie-obstétrique - Centre hospitalier Lyon sud

Pierre-Bénite, France

Outcomes

Primary Outcomes

Description of the pregnancy by parents who have chosen to carry to term despite a lethal fetal diagnosis

Time frame: About 1 hour and 30 minutes

Data from ClinicalTrials.gov

This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.