"The patient's journey" is an interview based study assessing the patients' experience from the first symptoms to a final diagnosis focusing on patients with small intestinal neuroendocrine tumors.
The project focus on patients with small intestinal neuroendocrine tumors (SiNET's) with an incidence of 1-2/100 000 yearly. The primary tumor(s) are often small and symptoms usually arise when the disease has become metastatic with hormonal symptoms and/or symptoms due to local growth. As the tumors grow slowly and the symptoms in many cases are rather diffuse and develops gradually over a long time period there is often a long delay from onset to a final diagnosis both depending on "patient's delay" and "doctor's delay" The aim of the current project is to map and analyze the patient's journey from the first appearance of symptoms to the time point of a final diagnosis and to try to identify factors contributing to a delayed process. The method is interview based and the interviews will be analyzed through the Design Thinking Methodology
Study Type
OBSERVATIONAL
Enrollment
20
Dept of Oncology
Gothenburg, Sweden
Initial symptoms
Mapping of patients initial symptoms and their time points through indepths interviews by design thinking methodology
Time frame: October 2019
Health care actions
Mapping of corresponding health care actions and their time points regarding the investigations of symptoms
Time frame: October 2019
Reasons for a delayed diagnosis
Mapping of herdles and delays in reaching a final diagnosis through design thinking methodology analysing the patients symptoms and the corresponding Health care actions
Time frame: October 2019
Patients' efforts
Mapping of actions taken by the patient, trying to be diagnosed correctly, through indepths interviews by design thinking methodology
Time frame: October 2019
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