Parkinson's disease leads to loss of employment on average within less than 10 years of disease onset and has been found to be associated with an increased absence from work. This combined with hospitalisation; use of secondary health services; drug usage; and caregivers needing to give up work contributed to the costs associated with the conditions. It has been estimated that early support for working age newly diagnosed would cost the government about 1.5 million Euro in the UK but might lead to a potential cost saving of over half a billion over 5 years. The study will explore the impact of a Parkinson diagnosis on employment. The study will be survey based and will include demographic questions: age, age at diagnosis of PD, educational level, and Nationality; questions pertaining to employment type, history, and reasons for leaving if this happened; and also general health.
Study Type
OBSERVATIONAL
Enrollment
696
For this cross sectional survey, participants will be receiving usual care according to there health care systems
Oxford Brookes University
Oxford, Oxfordshire, United Kingdom
Main occupation in the last 7 days
Questions asks: 'Which of these descriptions applies to your main occupation in the last seven days? and has the following options. 'In paid work (OR AWAY TEMPORARILY) (employee, self-employed, working for your family business) Unemployed and actively looking for a job Unemployed, wanting a job but not actively looking for a job Permanently sick or disabled In community or military service Doing housework, looking after children or other persons Retired In paid work (OR AWAY TEMPORARILY) (employee, self-employed, working for your family business) Unemployed and actively looking for a job Unemployed, wanting a job but not actively looking for a job Permanently sick or disabled In community or military service Doing housework, looking after children or other persons Retired Student
Time frame: baseline only (cross sectional)
Type of Work
Questions asks: 'Which category would best describe your current main occupation or skill set?' Managers or directors Professionals Technicians and Associate Professionals Clerical Support Workers Services and Sales Workers Skilled Agricultural, Forestry, and Fishery Workers Craft and Related Trades Workers Plant and Machine Operators and Assemblers Elementary Occupations eg salespersons, domestic, helpers, porters Armed Forces Occupations
Time frame: baseline only (cross sectional)
Symptom Severity-Distress
0-10 visual analogue scale (0 worst - 10 best)
Time frame: baseline only (cross sectional)
Symptom Severity-Pain
0-10 visual analogue scale (0 worst - 10 best)
Time frame: baseline only (cross sectional)
Symptom Severity-Fatigue
0-10 visual analogue scale (0 worst - 10 best)
Time frame: baseline only (cross sectional)
Symptom Severity-Depression
0-10 visual analogue scale (0 worst - 10 best)
Time frame: baseline only (cross sectional)
Symptom Severity-Anxiety
0-10 visual analogue scale (0 worst - 10 best)
Time frame: baseline only (cross sectional)
Symptom Severity - Sleep
0-10 visual analogue scale (0 worst - 10 best)
Time frame: baseline only (cross sectional)
Single Item Physical activity
Days per week of physical activity lasting 30 minutes or longer on a 0-7 integer scale
Time frame: baseline only (cross sectional)
Single Item Diet
Portions of fruit and vegetables consume per day on a 0-5+ integer scale
Time frame: baseline only (cross sectional)
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