Interviews With Older People From Turkish Origin in Belgium About Advance Care Planning

Universitair Ziekenhuis Brussel51 enrolled

Overview

Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails. Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care. The Turkish ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from Turkish origin are lacking. The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from Turkish origin in Belgium. Semi-structured interviews (in the native Turkish language) will be used.

Study Type

INTERVENTIONAL

Allocation

Purpose

OTHER

Masking

NONE

Enrollment

Conditions

Advance Care Planning Ethnic Minorities Turkish Origin

Eligibility

Sex: ALLMin age: 65 Years

Medical Language ↔ Plain English

Inclusion Criteria: People: * with Turkish origin who live in Belgium and are older than 65 years * who have also given informed consent to participate in this qualitative interview study Exclusion Criteria: * Patients who are terminal ill which means having a life-limiting disease with irreversible decline and who are actively dying (actively dying is related to patients with days of survival). (41) * Having cognitive impairment

Outcomes

Primary Outcomes

Knowledge about advance care planning from older people from Turkish origin in Belgium

This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you know in relation to advance care planning?

Time frame: 9 months

Experiences about advance care planning from older people from Turkish origin in Belgium

This is a qualitative study. We developed a semi-structured interview guide with the following questions:Have you yourself ever thought about your future healthcare? Have you yourself ever looked up something about that?

Time frame: 9 months

Views/preferences about advance care planning from older people from Turkish origin in Belgium

This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about discussing advance care planning now for the future? Even if you do not have such a serious illness at the moment, what are the advantages and disadvantages about discussing your wishes for the future, now?

Time frame: 9 months

Attitudes about advance care planning from older people from Turkish origin in Belgium

This is a qualitative study. We developed a semi-structured interview guide with the following questions: Before you got severe illness, do you wish to discuss to someone your future wishes in advance? Why? Do you wish to give authority on your behalf to someone? Why?

Time frame: 9 months

Barriers and facilitators for advance care planning from older people from Turkish origin in Belgium

This is a qualitative study. We developed a semi-structured interview guide with the following questions: In your opinion, what makes it easier or what would make it easier to talk about advance care planning? In your opinion, what makes it harder to talk about advance care planning?

Time frame: 9 months

Interviews With Older People From Turkish Origin in Belgium About Advance Care Planning

Overview

Conditions

Interventions

Eligibility

Locations (1)

Outcomes

Primary Outcomes