To estimate the impact of having a child with serious illness (SI) on the health and healthcare of other members of the child's family.
Although standard pediatric practice, when caring for a child with serious illness, is to provide support to the child's parents and any siblings, little quantitative information exists regarding what could be considered the "collateral impact" on other family members of having a child with serious illness in the family. This study seeks to provide such information, using existing claims data from the health insurance company, Cigna, to identify children with serious illness and then examining the health and health care of their family members. The investigators hypothesize that, compared to control families without a sick child, parents and siblings of children with serious pediatric illness (SPI) will have more new mental and physical health diagnoses, more new prescriptions, increased levels of Emergency Department (ED) and acute care services, and reduced levels of use of recommended chronic disease management for pre-existing conditions and of preventative services.
Study Type
OBSERVATIONAL
Enrollment
161,000
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
New mental health diagnoses among parents
Outcome will be assessed based on diagnoses in de-identified claims data
Time frame: 3 years
New mental health diagnoses among siblings
Outcome will be assessed based on diagnoses in de-identified claims data
Time frame: 3 years
New physical health diagnoses among parents
Outcome will be assessed based on diagnoses in de-identified claims data
Time frame: 3 years
New physical health diagnoses among siblings
Outcome will be assessed based on diagnoses in de-identified claims data
Time frame: 3 years
New mental health prescriptions among parents
Outcome will be assessed based on prescription data in de-identified claims data
Time frame: 3 years
New mental health prescriptions among siblings
Outcome will be assessed based on prescription data in de-identified claims data
Time frame: 3 years
New physical health prescriptions among parents
Outcome will be assessed based on prescription data in de-identified claims data
Time frame: 3 years
New physical health prescriptions among siblings
Outcome will be assessed based on prescription data in de-identified claims data
Time frame: 3 years
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Emergency department usage among parents
Outcome will be assessed based on encounter data in de-identified claims data
Time frame: 3 years
Emergency department usage among siblings
Outcome will be assessed based on encounter data in de-identified claims data
Time frame: 3 years
Ambulatory care usage among parents
Outcome will be assessed based on encounter data in de-identified claims data
Time frame: 3 years
Ambulatory care usage among siblings
Outcome will be assessed based on encounter data in de-identified claims data
Time frame: 3 years
Hospitalizations among parents
Outcome will be assessed based on encounter data in de-identified claims data
Time frame: 3 years
Hospitalizations among siblings
Outcome will be assessed based on encounter data in de-identified claims data
Time frame: 3 years
Adherence to chronic disease management standards among parents
Outcome will be assessed based on data in de-identified claims data
Time frame: 3 years
Receipt of well-child visit and childhood immunizations among siblings
Outcome will be assessed based on data in de-identified claims data
Time frame: 3 years