Implications of a Paediatrician-psychologist Tandem for Sickle Cell Disease Care and Impact on Cognitive Functioning

Fondation Ophtalmologique Adolphe de Rothschild155 enrolled

Overview

Sickle cell disease (SCD) necessitates a paediatric treatment plan that considers the influence of psychological, family and intercultural factors. At the Louis-Mourier Hospital (APHP) in Colombes, France, a paediatric-psychological partnership where a clinical psychologist accompanies the paediatrician at programmed consultations was introduced. The psychological repercussions of SCD were assessed among children and their parents treated in Colombes and in two other paediatric units without a paediatric-psychological partnership.

Study Type

OBSERVATIONAL

Enrollment

155

Conditions

Sickle Cell Disease

Interventions

Assessment of psychological repercussions of SCDOTHER

Quantitative relevant data culled from medical files and qualitative analysis based on data gathered from child and parent interviews, were collected in the three hospitals.

Eligibility

Medical Language ↔ Plain English

Inclusion Criteria: * Children under 18 years old * Major form of SCD (SS, SC, Sβ° thal, Sβ+ thal) diagnosed by electrophoresis Exclusion Criteria: * Child or parent residing in France less than 6 months * Having received SCD treatment in more than one centre

Outcomes

Primary Outcomes

Rey-Osterrieth complex figure test scores (ROCF recall scores)

The Rey-Osterrieth complex figure test (ROCF) is a neuropsychological assessment in which patients are asked to reproduce a complicated line drawing, first by copying it freehand (recognition), and then drawing from memory (recall). Scoring of drawings is based on the widely used 36-point scoring system (0 being the worst score and 36 the best).

Time frame: 1 day