The development of a personalized therapeutic education program dedicated to patients with metastatic prostate cancer and receiving next-generation hormone therapy would improve their knowledge of the disease, medication adherence and quality of life.
Study Type
OBSERVATIONAL
Enrollment
18
Patients will join with researchers for a 2 hour recorded group discussion to highlight themes identified to require educational intervention
Patients will attend 3-4 workshops on eg disease knowledge, medication management and side effects, adapted physical activity and nutrition
CHU de Nimes
Nîmes, France
Create a focus group
Transcribe interview and mark key points
Time frame: Day 0
Patient satisfaction
Yes/no
Time frame: End of workshops (max 2 months)
Successful running of workshop
Yes/no evaluated by the workshop leader
Time frame: End of workshops (max 2 months)
Patient participation rate in workshops
%
Time frame: End of workshops (max 2 months)
Patient-reported acceptability of programme
In-house questionnaire: 4 questions on 0-5 scale unacceptable to very acceptable and 4 open questions
Time frame: End of workshops (max 2 months)
Patient-reported satisfaction of programme
In-house questionnaire: 5 questions on 0-5 scale unsatisfied to very satisfied
Time frame: End of workshops (max 2 months)
Patient knowledge of their disease
In-house quiz: 7 multiple-choice questions
Time frame: End of workshops (max 2 months)
Patient quality of life
EQ-5D-3L
Time frame: 1 month after last workshop
Patient medication adherence
MMAS-9 questionnaire: good adherence is score = 8
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.
Time frame: End of workshops (max 2 months)