Asthma Academy: Use of Simulation and Telehealth to Empower Family Caregivers

University of Miami18 enrolled

Overview

The goal of this project is to implement and evaluate a novel intervention for low-income families to reduce the burden of caregivers of a child with asthma.

Study Type

INTERVENTIONAL

Allocation

NON_RANDOMIZED

Purpose

SUPPORTIVE_CARE

Masking

NONE

Enrollment

Conditions

Caregiver Burnout

Interventions

Asthma AcademyBEHAVIORAL

The Asthma Academy is a one hour virtual training that includes providing information about asthma, asthma medications, communicating with healthcare providers and navigating healthcare resources.

Telehealth VisitBEHAVIORAL

The telehealth Visit will be conduct by a trained Doctor of Nurse Practice (DNP) student via a scheduled meeting through zoom on the participant's smart phone or computer. The visit will last about one hour wherein participant will be asked about their asthma knowledge and will be given information about asthma.

Eligibility

Sex: ALLMin age: 18 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion criteria: 1. Must be age 18 or older 2. Able to speak and read English or Spanish 3. Have a smartphone or computer with active service 4. Care for a child with asthma between ages 5-12 5. Agree to participate Exclusion criteria: 1. Age less than 18 2. Inability to speak and read English or Spanish 3. Does not have a smartphone or computer with active service 4. Child does not have asthma 5. Care for a child less than 5 or greater than 12 6. Decline to participate 7. Prisoners

Locations (1)

University of Miami

Coral Gables, Florida, United States

Outcomes

Primary Outcomes

Change in Caregiver's asthma knowledge

The preliminary effect of the intervention in caregiver's asthma knowledge will be assessed via the Asthma Knowledge Questionnaire. The questionnaire is completed by the caregiver and has 17 items with a total score range of 17-85 with a higher score indicating higher asthma knowledge.

Time frame: Baseline, Week 3

Change in Caregiver's sleep

The preliminary effect of the intervention in caregiver's sleep will be assessed via the Adult Sickle Cell Quality of Life Measurement (ASCQ-Me) Version 2.0 Sleep Impact - Short Form Questionnaire. The questionnaire is completed by the caregiver and has 5 items with each item having a scoring possibility of 1-5. The total score ranges from 5-25 with a higher score indicating better sleep.

Time frame: Baseline, Week 3

Change in Caregiver's anxiety

The preliminary effect of the intervention in caregiver's anxiety will be assessed via the Quality of Life in Neurological Disorders (Neuro-QOL ) Anxiety - Short Form Questionnaire. The questionnaire is completed by the caregiver and has 8 items with each item having a scoring possibility of 1-5. The total score ranges from 8-40 with a higher score indicating increased anxiety symptoms.

Time frame: Baseline, Week 3

Change in Caregiver's depressive symptoms

The preliminary effect of the intervention in caregiver's depressive symptoms will be assessed via the Patient-Reported Outcomes Measurement Information System (PROMIS) Emotional Distress - Depression - Short Form 8a Questionnaire. The questionnaire is completed by the caregiver and has 8 items with each item having a scoring possibility of 1-5. The total score ranges from 8-40 with a higher score indicating increased depressive symptoms.

Time frame: Baseline, Week 3

Performance of DNP students conducting the Teleheath Visits

Performance of the DNP students conducting the telehealth visits will be evaluated by the average score rated by a faculty and a peer for each DNP. Each total score is tallied from 5 performance categories with each category having a scoring possibility of 0-3. The total score ranges from 0-15 with the higher score indicating a better performance.

Data from ClinicalTrials.gov

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