Multicenter Registry for Patients With Childhood.Onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts

Klinikum Oldenburg gGmbH90 enrolled

Overview

KRANIOPHARYNGEOM Registry 2019 will prospectively collect and descriptively analyse data on diagnostics, treatment, and follow-up of patients with craniopharyngioma. In continuation of preceding studies also patients with xanthogranuloma, meningioma, pituitary adenoma, prolactinoma and cystic intracranial malformations will be registered.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Craniopharyngioma Obesity

Eligibility

Sex: ALLMin age: 1 DayMax age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: 1. Diagnosed with craniopharyngioma for the first time 2. Age at diagnosis 18 years or less of age 3. Agreement from patient's parents or legal guardian as well as the patient Exclusion Criteria: 1. Age at diagnosis over 18 years of age 2. Diagnosis different from craniopharyngioma

Locations (1)

Klinikum Oldenburg

Oldenburg, Lower Saxony, Germany

Outcomes

Primary Outcomes

Overall Survival

Overall survival as measured by Kaplan Meyer analyses

Time frame: 3 years follow-up

Progression-free Survival (PFS)

Progression-free survival as measured by Kaplan Meyer analyses

Time frame: 3 years follow-up

Secondary Outcomes

Quality of life (QoL)

Domains of the PedQol instrument (questionnaire for assessment of health-related QoL in childhood cancer patients.

Time frame: 3 years follow-up

Multicenter Registry for Patients With Childhood.Onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts

Overview

Conditions

Eligibility

Locations (1)

Outcomes

Primary Outcomes

Secondary Outcomes

Central Contacts