PARKINSUN is a new communication aid tool, expected to favor global patient centered care for PD patients during consultation with GPs and neurologists. Two groups of patients will be randomized to use or not PARKINSUN when they consult their physicians every 3 months during 7 months.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
HEALTH_SERVICES_RESEARCH
Masking
NONE
Enrollment
120
Participating patients visit their general practitioner or neurologist with PARKINSUN at 1 months, 4 months, 7 months
Participating patients visit their general practitioner or neurologist without PARKINSUN at 1 months, 4 months, 7 months
Hopital Roger Salengro, CHU Lille
Lille, France
RECRUITINGvariation of the delta of G-MISS Questionnaire
Time frame: at 7 months
G-MISS-Questionnaire at the end of each consultation (1 month, 4 months and 7 months)
Patient's satisfaction will be assessed by the G-MISS-Questionnaire. The G-MISS questionnaire is a standardized and validated tool in French. This questionnaire is taken from the American MISS-21 questionnaire, already used in neurologists to measure the satisfaction of patients with PD, after consultation It is easy to use with an average filling time of 6 minutes.
Time frame: at the end of each consultation (1 month and 7 months)
Global score of PARKINSUN
Time frame: at the end of each consultation ((1 month and 7 months)
Individuals scores of PARKINSUN
Time frame: at the end of each consultation ((1 month and 7 months)
MDS-UPDRS scores
Time frame: at the end of each consultation ((1 month and 7 months)
PDQ-39 scores 6. Interpersonal Reactivity Index (IRI)
Time frame: at the end of each consultation ((1 month and 7 months)
Likert Scale
Time frame: at the end of each consultation (1 month and 7 months)
Interpersonal Reactivity Index (IRI)
Time frame: at the end of each consultation (1 month and 7 months)
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