The purpose of this low interventional study is to collect data on everyday movement in boys with Duchenne muscular dystrophy (DMD) using wearable activity sensors. The activity sensors could provide useful information beyond what is currently collected by functional (movement, strength) assessments in clinic. This information can help with the understanding of the impact of DMD, and perhaps with how possible treatments can affect this impact.
Study Type
OBSERVATIONAL
Enrollment
2
Wrist and ankle sensors to be worn continuously for 2-week intervals.
Nationwide Children's Hospital
Columbus, Ohio, United States
Mean change from baseline and variability of activity measures
Time frame: baseline, 3, 6, 9, and 12 months
Mean change from baseline in functional assessment scores obtained in the clinic
Time frame: baseline, 3, 6, 9, and 12 months
Comparison of mean changes from baseline and correlation coefficient between activity monitoring data and functional data obtained in clinic
Time frame: baseline, 3, 6, 9, and 12 months
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