ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD) represents the formalized integration of ARTFL (U54 NS092089; funded through 2019) and LEFFTDS (U01 AG045390; funded through 2019) as a single North American research consortium to study FTLD for 2019 and beyond.
The ARTFL LEFFTDS Longitudinal Frontotemporal Dementia (ALLFTD) study aims to evaluate sporadic (s-) and familial (f-) frontotemporal lobar degeneration (FTLD) patients and asymptomatic family members of f-FTLD patients, characterizing the cohorts longitudinally and informing clinical trial design. The study has two arms: a "longitudinal arm" involving a comprehensive assessment of clinical, functional, imaging, and biofluid data collection annually, and a "biofluid-focused arm" involving limited clinical data to accompany biospecimen collection. For more information: https://www.allftd.org/
Study Type
OBSERVATIONAL
Enrollment
2,100
University of Alabama Birmingham
Birmingham, Alabama, United States
RECRUITINGUniversity of California, Los Angeles
Los Angeles, California, United States
RECRUITINGUniversity of California, San Diego
San Diego, California, United States
RECRUITINGUniversity of California San Francisco
San Francisco, California, United States
Change in Brain Volumes
Compare rates of change in whole brain and regional volumes between asymptomatic f-FTLD and symptomatic f- and s-FTLD, measured using MRI.
Time frame: Baseline, 1 Year, 2 Year, 3 Year, 4 Year, 5 Year
Change in NIH Examiner Executive Composite Score
Evaluate change in NIH Examiner Executive Composite Score in asymptomatic f-FTLD.
Time frame: Baseline, 1 Year, 2 Year, 3 Year, 4 Year, 5 Year
Change in Multidomain Impairment Rating (MIR) Scale
Annual change in MIR score (total score 0-3), which is a new global scale for FTLD that incorporates behavioral, cognitive, and motor dysfunction in the rating.
Time frame: Baseline, 1 Year, 2 Year, 3 Year, 4 Year, 5 Year
Plasma Neurofilament Light Chain Analysis
Annual blood samples will be collected to detect changes in plasma neurofilament light chain concentrations
Time frame: 5 years
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University of Colorado Denver
Denver, Colorado, United States
RECRUITINGMayo Clinic Florida
Jacksonville, Florida, United States
RECRUITINGEmory University
Atlanta, Georgia, United States
RECRUITINGNorthwestern University
Chicago, Illinois, United States
RECRUITINGIndiana University
Indianapolis, Indiana, United States
RECRUITINGJohns Hopkins University
Baltimore, Maryland, United States
RECRUITING...and 17 more locations