Document and evaluate the impact of societal restrictions due to the pandemic on SCI- and ABI-related disability and functional impairments, and the resultant effects on psychological wellbeing, physical wellbeing and quality of life for those with SCI/ABI.
The investigators will conduct a longitudinal survey to examine the impact of COVID19 on those with SCI and ABI. An a priori sample size of 117 individuals based on an alpha level of .05 and level of acceptable error at 3% was calculated. Anticipating for loss to follow up rate of up to 20%, a total of 142 participants will be recruited. Patients will be recruited among those who attend virtual medical appointments at Parkwood Institute for ABI and SCI. We will also liaise with SCI-Ontario and the Ontario Brain Injury Association to assist in the recruitment of additional participants. Those who consent will complete an online survey on enrollment into the study, and subsequently at 3 and 6 months. Demographic data of the individuals participating in the study will be recorded. Participants' access to health care services will be evaluated using the following subdomains: medical care, complementary care, medications/equipment, satisfaction/acceptability, affordability, ability to engage, and indirect support.
Study Type
OBSERVATIONAL
Enrollment
142
Lawson Health Research Institute
London, Ontario, Canada
Change in Fear of COVID-19
Fear of COVID-19 Questionnaire
Time frame: baseline, 3 months, 6 months
Change in ability to participate in social roles and activities
NeuroQol SF v1.0 - Ability to Part. in SRA
Time frame: baseline, 3 months, 6 months
Change in depressive symptoms
NeuroQol SF v1.0 - Depression
Time frame: baseline, 3 months, 6 months
Change in positive affect and well-being
NeuroQol SF v1.0 - Pos. Affect \& Well-Being
Time frame: baseline, 3 months, 6 months
Change in anxiety
NeuroQol SF v1.0 - Anxiety
Time frame: baseline, 3 months, 6 months
Change in fatigue
NeuroQol SF v1.0 - Fatigue
Time frame: baseline, 3 months, 6 months
Change in emotional and behavioural dyscontrol
NeuroQol SF v1.0 - Emotional \& Beh. Dyscontrol
Time frame: baseline, 3 months, 6 months
Change in satisfaction with social roles and activities
NeuroQol SF v1.0 - Satisfaction w SRA
Time frame: baseline, 3 months, 6 months
Change in sleep disturbance
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NeuroQol SF v1.0 - Sleep Disturbance
Time frame: baseline, 3 months, 6 months
Change in stigma
NeuroQol SF v1.0 - Stigma
Time frame: baseline, 3 months, 6 months
Change in cognitive function
NeuroQol SF v1.0 - Cognitive Function
Time frame: baseline, 3 months, 6 months
Change in social distancing strategies used
23 questions about strategies to social distance
Time frame: baseline, 3 months, 6 months
Change in thoughts and feelings about social distancing
22 questions about social distancing
Time frame: baseline, 3 months, 6 months