Early Support and Physiotherapy for Children and Their Motor Skills

Centre Hospitalier Universitaire Dijon37 enrolled

Overview

The App-eMot-Quali project proposed here is the first phase in the implementation of a care pathway supported by a digital tool. It consists of a qualitative study allowing individual interviews to be conducted with parents of infants at high risk of cerebral palsy and health professionals in order to identify and precisely describe the needs and difficulties present during the child's rehabilitative care during the first months of life.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Infant Cerebral Palsy Neonatal

Interventions

Focus groupOTHER

Holding of a focus group by a sociologist

Semi-directive interviewOTHER

Conducting a semi-directive interview by a sociologist after discharge from hospital

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: 1. For the parents: Parents of children under 24 months of age at high risk of cerebral palsy who have given their oral consent. Children at high risk of cerebral palsy are defined as : * Premature children ≤ 31 WG + 6 days or birth weight less than 1000g. * Children who have had a stroke or stage 2 or 3 hypoxia-ischemia according to the Sarnat classification. The selection of parents may be retrospective with less than 24 months since hospital discharge. 2. For the health professionals: Physiotherapists, psychomotricians, psychologists and doctors involved in the care of children at high risk of cerebral palsy. Exclusion Criteria: * A person who is physically or cognitively unable to participate in a one-on-one interview or who does not have a sufficient command of the French language. * Parents aged \<18 years * Parents in protective custody * Parents of children with major orthopedic or traumatic disorders unrelated to the high risk of cerebral palsy. * Parents of a child with a genetic disease.

Locations (1)

Chu Dijon Bourgogne

Dijon, France

Outcomes

Primary Outcomes

Typology and categorization of the needs and difficulties encountered by the parents.

collected through semi-directive individual interviews with parents

Time frame: Through study completion an average of 21 months

Data from ClinicalTrials.gov

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