COVID-19 Pandemic and Parents of Disabled Children

Gaziosmanpasa Research and Education Hospital309 enrolled

Overview

Pandemic period could affect the disabled children's rehabilitation and follow-up negatively because of preventive measures and this could create adverse results on their parents. In this research, it is aimed to determine the positive and negative effects of pandemic on parents and disabled children and to provide an insight for future solutions.

To determine the effect of COVID-19 pandemic and the possible difficulties experienced by the parents of disabled children, a questionnaire was prepared. It takes approximately 10-15 minutes to complete the survey. Questionnaire is loaded to qualtrics program and sent to the families by e-mail or social media accounts.

Study Type

INTERVENTIONAL

Allocation

Purpose

SCREENING

Masking

NONE

Enrollment

309

Conditions

COVID-19 Disabilities Multiple Cerebral Palsy Muscular Dystrophies

Interventions

Difficulties lived by disabled children's parents in the period of COVID-19 pandemicOTHER

It will be a cross sectional study to obtain the information on difficulties lived by disabled children's parents during recent pandemic period

Eligibility

Sex: ALLMin age: 18 YearsMax age: 65 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: * Having disabled child/children * Having ability and facility to use internet * Having ability to read and write * Having enough cognitive capacity to answer the questionnaire * To accept to participate the research Exclusion Criteria: * Not having disabled child/children * Not having ability and facility to use internet * Not having ability to read and write * Not having enough cognitive capacity to answer the questionnaire * Not to accept to participate the research

Locations (1)

Health Science University Gaziosmanpasa Training and Research Hospital

Istanbul, Gaziosmanpasa, Turkey (Türkiye)

Outcomes

Primary Outcomes

A questionnaire that we created will be used to determine the difficulties experienced by disabled children's parents during Covid 19 pandemic related to their medical follow-up

Difficulties related to rehabilitation facilities, other medical conditions or ortosis could increase because of Covid 19 pandemic unique conditions

Time frame: 4 weeks

Secondary Outcomes

The Fear of COVID-19 Scale

The Fear of COVID-19 Scale, a seven-item scale, has robust psychometric properties. It is reliable and valid in assessing fear of COVID-19 among the general population and will also be useful in allaying COVID-19 fears among individuals. Score is minimum 7 pointts and maximum 35 points.

Time frame: 4 weeks

Data from ClinicalTrials.gov

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