Addressing Barriers to Palliative Care Use in Bladder Cancer

H. Lee Moffitt Cancer Center and Research Institute54 enrolled

Overview

Investigators plan to establish an in-depth understanding of knowledge and beliefs about palliative care in advanced Bladder Cancer patients and their caregivers, and to identify factors associated with positive and negative experiences with palliative care services among those who have received them.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Muscle-Invasive Bladder Carcinoma Bladder Cancer Stage II Bladder Cancer Stage III Bladder Cancer Stage IV

Interventions

SurveysOTHER

Survey will be administered involving questions regarding knowledge and perception of palliative care.

Eligibility

Sex: ALLMin age: 18 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: * Eligibility for both patient and caregiver participants will include: * age ≥18 years * able to speak and read English * cognitively able to participate in study tasks * willing to participate in surveys, semi-structured interviews, and/or focus groups * able to participate in either a Zoom meeting or phone interview * able to complete an emailed or paper survey * Patient Participants: a diagnosis of muscle-invasive or locally advanced bladder cancer (stages II-IV). Exclusion Criteria: * Patients and caregivers will be excluded if unable to provide verbal or written consent

Locations (1)

Moffitt Cancer Center

Tampa, Florida, United States

Outcomes

Primary Outcomes

Development of palliative care knowledge and beliefs

Thematic analysis of interviews transcriptions to identify the themes that underpin the development of palliative care beliefs among patients with muscle invasive bladder cancer.

Time frame: 12 Months

Proportion with accurate palliative care knowledge and beliefs

Proportion of patients correctly answering each palliative care knowledge question.

Time frame: 12 Months

Secondary Outcomes

Association between Bladder Cancer stage and palliative care knowledge

Analysis of variance calculated for the mean number of subjects with each cancer stage correctly answering each palliative care knowledge question

Time frame: 12 Months

Data from ClinicalTrials.gov

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