Palliative Care in Maternity and Neonatology

N/AUnknownNCT04619901

University Hospital, Lille34 enrolled

Overview

Palliative care is now an accepted principle in most maternity and neonatology wards, however not much is known about its psychological and social consequences on families. Some children continue their life after a palliative care decision has been taken. In France, quality of life and the neuro-developmental evolution of newborns who continue their life after a palliative care decision has been taken, have never been studied.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Neonatal Critical Care

Interventions

Semi-structured interviewsOTHER

Exploring the psychological and social impact on parents of a palliative care decision concerning their child in the neonatal period

QuestionnaireOTHER

Assessing the neuro-developmental evolution of children and understanding the determinants of the psychological and social impact of palliative care decisions on parents

following ScalesOTHER

Scales : Hospital Anxiety and Depression, Intolerance to Uncertainty, and Brief COPE.

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria: * Father and/or Mother of a child, who is alive or not, for whom a decision of palliative care has been made in the neonatal period * Under the care of one of the Level 3 Maternity Centers in the North and Pas-de-Calais departments (Arras, Lens, Lille, Valenciennes) since 2018 * Written consent of the two legal guardians of the child allowing the collection of data concerning the child * Written consent of the parent(s) participating to this study by completing the parental questionnaires Exclusion Criteria: * Medico-legal complaint underway * Parents who do not understand French * Parents or children who are under legal protection (guardianship, curatorship) * Parents or children who are not Social Security beneficiaries

Locations (4)

CH ARRAS

Arras, France

NOT_YET_RECRUITING

CH LENS

Lens, France

NOT_YET_RECRUITING

Hop Jeanne de Flandre Chu Lille

Lille, France

RECRUITING

CH Valenciennes

Outcomes

Primary Outcomes

Semi Structured interview

Parents : Exploring the psychological and social impact of the palliative care decision 2 hours semi structured interviews will be done to describe the psychological and social impact a decision of palliative care concerning their newborn infant has on parents.