The T1D Exchange Registry

T1D Exchange, United States50,000 enrolled

Overview

The T1D Exchange Registry is a research study, conducted over time, for individuals with type 1 diabetes and their supporters. Participants volunteer to provide their data for research (for example, by answering questions in annual surveys). Once enrolled, Registry participants have the opportunity to sign up for other studies on various topics related to type 1 diabetes. To participate, you will be asked to: * Read and sign an online informed consent form * Take a survey describing specific demographic and type 1 diabetes management information * Update your information annually * Periodically opt in for additional research opportunities (if you choose), i.e. taking new surveys or uploading health device data

Study Type

OBSERVATIONAL

Enrollment

50,000

Conditions

Diabetes Mellitus, Type 1 Diabetes Type 1 Diabetes Diabetes Mellitus

Interventions

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria: * Clinical diagnosis of type 1 diabetes. * Individuals younger than 18 years of age must have parent/guardian consent. * Must be able to read and understand English. * Currently living in the United States Exclusion criteria: * Does not use insulin and has not had a pancreatic or islet cell transplant. * Cannot fully read and understand English. * Does not currently live in the United States.

Outcomes

Primary Outcomes

Gather longitudinal data from individuals living with type 1 diabetes.

Gather longitudinal data on disease, health status, and patient-reported outcomes of individuals living with type 1 diabetes. This will be achieved by presenting participants with annual questionnaires, tracking any changes in their responses over time.

Time frame: 10 years