This study aims at evaluating the quality of life of patients with slowly progressive neuromuscular disorders who are dependant on mechanical ventilation (daily usage ≥ 16h).
Study Type
OBSERVATIONAL
Enrollment
119
AFM Téléthon
Évry, France
Score of the Severe Respiratory Insufficiency questionnaire (SRI)
Higher score represents better quality of life
Time frame: 1 Day
Score of the Quality of Life Measure for people with slowly progressive and genetic neuromuscular disease questionnaire (QoL-gNMD)
Higher score represents better quality of life
Time frame: 1 Day
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.