Daily Study of Caregiving Relationships and Health

The University of Texas Health Science Center at San Antonio37 enrolled

Overview

The purpose of the Daily Study of Caregiving Relationships and Health is to learn how caregiving relationships and social connectedness are associated with dementia caregivers' health, health behaviors, and diurnal patterns of salivary cortisol. Investigators are asking caregivers to complete 14-days of surveys which ask about their relationships and health behaviors, in addition to 2 longer surveys (baseline and 3-month follow up). Investigators hypothesize that on days when caregivers receive more emotional support, they will report better health behaviors (e.g., improved sleep quality). On days when caregivers experience greater 1) strain and 2) loneliness, they will report poorer health behaviors. Information about which aspects of social relationships and social connectedness most affect health will be used to inform interventions programs.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Caregiver Burnout Dementia Dementia of Alzheimer Type Relations, Family Social Stress

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Spouse or partner to an individual living with ADRD who has received a diagnosis from a physician * Aged 18 years or older Provides assistance with at least one instrumental activities of daily living or activities of daily living * Not paid to provide care * Cares for someone with a global deterioration score of 1 to 5 (early to mid-stage dementia) * Has reliable access to email and text messaging, and smart phone device * Live within 40 miles of UT Health San Antonio (if completing saliva collection protocol) Exclusion Criteria: * Inability to read and speak English or Spanish * Vision or hearing impairment affecting ability to complete study protocols (e.g., blindness) Additional exclusion Criteria if completing saliva collection protocol: * Experiencing a major health event within the previous 6 months (e.g., stroke, myocardial infarction, in-patient surgery, cancer besides skin cancer) * Symptoms of infectious disease within the previous 14-days (e.g., COVID-19, oral infection) * Diagnosis of major depressive disorder * HPA axis endocrine disorder (e.g., Cushings or Addison's disease) * Use of corticosteroid medication * Pregnancy * Participation in overnight shift work

Outcomes

Primary Outcomes

Frequency of daily health symptoms

Frequency of adverse health symptoms experienced by participant (e.g., fatigue; 0 to 21)

Time frame: 2 weeks

Perceived sleep quality

Perceived sleep quality the night prior (1 to 5)

Time frame: 2 weeks

Physical activity

Participation in at least 30 minutes of moderate to vigorous physical activity (binary)

Time frame: 2 weeks

Consumption of alcoholic beverages

Consumption of 1 or more alcoholic beverages (binary)

Time frame: 2 weeks

Potential binge eating behaviors

Frequency of binge eating behaviors, including consuming unusually large amount of food, feeling out of control, and unplanned and repetitive eating (0 to 33)

Time frame: 2 weeks

Secondary Outcomes

Total salivary cortisol

Area under the curve score to approximate total cortisol output during the day (μg/dL)

Time frame: 2 weeks

Daily Study of Caregiving Relationships and Health

Overview

Conditions

Interventions

Eligibility

Locations (1)

Outcomes

Primary Outcomes

Secondary Outcomes