Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Memorial Sloan Kettering Cancer Center250 enrolled

Overview

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Study Type

OBSERVATIONAL

Enrollment

250

Conditions

Desmoplastic Small Round Cell Tumor

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria: * Participants must have a diagnosis of desmoplastic small round cell tumor * Participants may be of any age as long as the appropriate consent and assent may be obtained * Willing to provide historical and longitudinal clinical data Exclusion Criteria: * Participant unwilling to provide consent or share historical and longitudinal clinical data

Locations (1)

Memorial Sloan Kettering Cancer Center (All Protocol Activities)

New York, New York, United States

Outcomes

Primary Outcomes

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

The aim of this study is the collection of data.

Time frame: 7 years

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Overview

Conditions

Eligibility

Locations (1)

Outcomes

Primary Outcomes

Central Contacts