The purpose of this prospective monocenter observational study is to assess the impact of the first introduction of formal home help (personalized autonomy allowance for seniors) on the quality of life of home caregivers of elderly patients with neurocognitive impairment.
An aging population is leading to an increase in neurodegenerative disorders that are responsible for loss of autonomy. In order to keep patients with neurocognitive impairment at home, the availability of home caregivers is essential. The neurocognitive deterioration of elderly patients is a significant burden for home caregivers and can affect their quality of life. The implementation of formal home help (personalized autonomy allowance for seniors) can relieve home caregivers and improve their quality of life. Conduct of research: Elderly patients followed in the geriatric department of the Mulhouse French hospital, and for whom a formal home help (personalized autonomy allowance for seniors) is initiated will be recruited. The evolution of home caregiver's quality of life, burden and vulnerability, will be assessed during three months.
Study Type
OBSERVATIONAL
Enrollment
12
Setting up of a formal home help
GHRMSA
Mulhouse, Haut-Rhin, France
Caregiver quality of life
Variation of caregiver quality of life between inclusion and 90 days. Quality of life is assessed with the PIXEL study evaluation scale. This is a 20-item scale, subdivided in four domains: behavioral capacities to face difficulties generated by the patient, relation with the environment, psychological perception of the situation, perception of a possible distress. Score ranges from 0 to 100 points (5 points for each item).
Time frame: 90 days
Caregiver vulnerability
Variation of caregiver vulnerability between inclusion and 90 days. Vulnerability is assessed through another PIXEL study 20-item evaluation scale. Score ranges from 0 to 100 points.
Time frame: 90 days
Caregiver burden
Variation of caregiver burden between inclusion and 90 days. Burden is assessed with the 7-item mini-Zarit scale. Score ranges from 0 to 7.
Time frame: 90 days
Caregiver quality of life according to the type of formal home care
Variation of caregiver quality of life between inclusion and 90 days. Quality of life is assessed with the PIXEL study evaluation scale.
Time frame: 90 days
Caregiver vulnerability according to the type of formal home care
Vulnerability is assessed through another PIXEL study 20-item evaluation scale.
Time frame: 90 days
Caregiver burden according to the type of formal home care
Variation of caregiver burden between inclusion and 90 days. Burden is assessed with the 7-item mini-Zarit scale. Score ranges from 0 to 7.
Time frame: 90 days
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Variation of quality of life score according to each domain
Evolution of quality of life according to each domain of the PIXEL study evaluation scale.
Time frame: 90 days
Description of the aids set up within the framework of the personalized autonomy allowance for seniors program.
Formal home help can include several home services: meal delivery, domestic help, home care nurse, etc.
Time frame: 90 days