The PaTHS Descriptive Correlational Longitudinal Study

Children's Mercy Hospital Kansas City22 enrolled

Overview

The primary objective of this study is to measure parent's post-traumatic stress before and after their infant's second palliative heart surgery for single ventricle congenital heart disease. The investigators will use the posttraumatic stress disorder checklist for the DSM-V (PCL-5) to measure levels 2-4 weeks before and after the infant's second heart surgery. The investigators aim to describe the levels at the two-time points, compare the scores, and identify demographic information that correlates with the scores.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Single-ventricle Posttraumatic Stress Disorder Psychosocial Impairment

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria: * Parent who is 18 years or older of an infant with SVCHD * Following with CHAMP through Children's Mercy Hospital. Any person personally identifying as a parent of the child, who lives in the same household as the infant, and who will provide primary care after discharge from the hospital is eligible to participate. Exclusion Criteria: * Parents of an SVCHD infant who is undergoing end-of-life care, determined by the primary care team.

Locations (1)

Outcomes

Primary Outcomes

Measure the level of parental post-traumatic stress two to four weeks before their infant's second palliative heart surgery

Measure level using the posttraumatic stress disorder checklist for the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition. The scores range 0-80 with scores greater than or equal to 31 suggest provisional Posttraumatic stress disorder diagnosis.

Time frame: on average at 4-6 months of age

Secondary Outcomes

Measure the level of parental post-traumatic stress two to four weeks after discharge following their infant's second palliative heart surgery.

Time frame: On average 5-6 months of age