Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.
The aim of this project will be to establish a broad and wide-ranging registry and biorepository of blood samples from patients with pulmonary hypertension, including all WHO groups I-V to be used for future research in these areas. This will be both a retrospective and prospective project. The registry and biorepository will be utilized to study and grow our knowledge of the cellular mechanisms and mediators of the disease and, in turn, contribute to advancements in treatment.
Study Type
OBSERVATIONAL
Enrollment
300
University of Kansas Medical Center
Kansas City, Kansas, United States
RECRUITINGCollect Clinical Data
Collect clinically obtained data from current and deceased patients with pulmonary hypertension to support research.
Time frame: From Enrollment to 6 Months
Establish a Biorepository
Establish a collection of biospecimens from patients with pulmonary hypertension.
Time frame: From Enrollment to 6 Months
Biospecimens Collection
Correlate biospecimens to longitudinally collected individual patient data.
Time frame: From Enrollment to 12 Months
Collaborate
Provide biospecimens to researchers investigating pulmonary hypertension. Separate IRB approval will be needed for these studies.
Time frame: From Enrollment to 24 Months
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