A cross-sectional multicenter study using a questionnaire assessing occupational and financial situation before and after the onset of type 1 diabetes was distributed to all families with a child diagnosed with type 1 diabetes before the age of 14 years in nine German pediatric diabetes centers.
This cross-sectional multicenter study was conducted between January and June 2018 during a three months period per center. The selected nine pediatric diabetes centers covered all regions of Germany. The study participants were mothers, fathers, or other primary caregivers of children and adolescents diagnosed with type 1 diabetes before 14 years of age. During a regularly scheduled medical visit, in Germany usually 4 per year, families were informed about the study procedure, its aims and anonymous data collection and analyses. The answered questionnaires were either collected in a closed box in each diabetes center or could be sent anonymously via a prepaid envelope to the study administration center.
Study Type
OBSERVATIONAL
Enrollment
1,144
Hannover Medical School
Hanover, Lower Saxony, Germany
occupational situation of parents
questionnaire with 7 items to capture changes in occupational situation of parents after the onset of type 1 diabetes in their child
Time frame: up to 12 weeks
number of participants reporting financial burden
questionnaire to capture changes in occupational situation of parents after the onset of type 1 diabetes in their child
Time frame: up to 12 weeks
number of participants reporting emotional and/or psychosocial burden
questionnaire to capture psychosocial and emotional burden of parents in the year following the diagnosis of diabetes in a child
Time frame: up to 12 weeks
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