atients with cancer face difficult choices that require balancing competing priorities such as survival, functional capacity and symptom relief. Most patients with advanced cancer (\>80%) expect their sensitive discussions with physicians about prognosis and treatment choices, in order to be involved in the decision making process. Nevertheless, this kind of discussion is frequently lacking. Consequently, patients often have a biased view of their own prognosis such as an underestimation of disease severity, or unrealistic expectations for cure. Patients with advanced hepatocellular carcinoma (HCC) may be treated with systemic therapies which may prolong survival, but are not curative. Patients with advanced HCC often report expectations for survival and treatment-related side-effects that differ from their treating physician. Accordingly, communication on prognostic and treatment choices is essential to obtain an accurate understanding of the disease that allows patients to make informed decisions. To the best of our knowledge, a thorough evaluation of the physician-patient communication quality has never been performed in advanced HCC patients. The aim of our study, is to assess the perception of the expected prognosis, the treatment side-effects; by the patient and by his investigator during the first consultation before the initiation
atients with cancer face difficult choices that require balancing competing priorities such as survival, functional capacity and symptom relief. Most patients with advanced cancer (\>80%) expect their sensitive discussions with physicians about prognosis and treatment choices, in order to be involved in the decision making process. Nevertheless, this kind of discussion is frequently lacking. Consequently, patients often have a biased view of their own prognosis such as an underestimation of disease severity, or unrealistic expectations for cure. Patients with advanced hepatocellular carcinoma (HCC) may be treated with systemic therapies which may prolong survival, but are not curative. Patients with advanced HCC often report expectations for survival and treatment-related side-effects that differ from their treating physician. Accordingly, communication on prognostic and treatment choices is essential to obtain an accurate understanding of the disease that allows patients to make informed decisions. To the best of our knowledge, a thorough evaluation of the physician-patient communication quality has never been performed in advanced HCC patients. The aim of our study, is to assess the perception of the expected prognosis, the treatment side-effects; by the patient and by his investigator during the first consultation before the initiation
Study Type
OBSERVATIONAL
Enrollment
150
Administation of two surveys to included patients, about the perception of the disease and the expectations related to the treatment. The physician will be asked to complete a survey on his or her perception of the prognosis and information received by the patient.
Hôpital Avicenne
Bobigny, France
Assistance Publique - Hôpitaux de Paris
Paris, France
Evaluate the concordance between the patient's perception of his prognosis and treatment side effects with the one of his treating physician.
Use of survey completed by the patient and the doctors to assess the primary endpoint
Time frame: 12months
Compare the patient's expectations for the aforementioned items to those of his physician and the degree of concordance between them.
Use of survey completed by the patient and the doctors to assess the primary endpoint
Time frame: 12 months
Evaluation of patient satisfaction with the information received during the consultation
Use of survey completed by the patient and the doctors to assess the primary endpoint
Time frame: 12 months
Assessment of patient-reported symptoms of anxiety and depression
Use of survey completed by the patient and the doctors to assess the primary endpoint
Time frame: 12 months
Evaluate the association between individual prognosis expectation (patient and physician) and data from the available literature.
Use of survey completed by the patient and the doctors to assess the primary endpoint
Time frame: 12 months
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