Only a limited percentage of persons with MS (pwMS) participate to multidisciplinary rehabilitation because of poor support, knowledge and motivation. The investigators reasoned that pwMS should be more effectively prepared to increase their adherence. This study propose the implementation of an innovative collaborative approach, called "brief high-impact preparatory experience" (b-HIPE), inspired by an overarching model based on the interplay between competence, motivation and opportunity to increase in a short time awareness and motivation of pwMS. The aim of the study is the evaluation of its feasibility. For this pilot study the investigator chose a single-group design with repeated measurements at baseline and post intervention.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
TREATMENT
Masking
NONE
Enrollment
30
The intervention consists in a one-week intensive rehabilitation in which participants underwent to a multidimensional rehabilitation composed by physical rehabilitation, mental wellbeing, a proper diet and engaging physical activity (a sail course). Digital motivating reinforcements are proposed to the participants with the aim to maintain the correct lifestyle learned in the B-HIPE program.
IRCCS Fondazione Don Carlo Gnocchi
Milan, Italy
RECRUITINGFS-36 Health Related Quality of Life (HRQoL)
Questionnaire to Measure Health-Related Quality of Life
Time frame: Change between the baseline - T0 (before the intervention) and 1 month after the end of the intervention (T1)
The Fatigue Severity Scale (FSS)
Questionnaire to Measure the fatigue
Time frame: Change between the baseline - T0 (before the intervention) and 1 month after the end of the intervention (T1)
Food frequency questionnaire (FFQ)
Questionnaire to evaluate usual frequency of foods and beverages
Time frame: Change between the baseline - T0 (before the intervention) and 1 month after the end of the intervention (T1)
MSIS29- Multiple Sclerosis Impact Scale
A scale for the evaluation of the impact of MS on day-to-day life
Time frame: Change between the baseline - T0 (before the intervention) and 1 month after the end of the intervention (T1)
MOS Sleep Scale (MOSS)
A scale for the evaluation of the quality and the quantity of sleep
Time frame: Change between the baseline - T0 (before the intervention) and 1 month after the end of the intervention (T1)
Restless Legs Scale (RLS)
A scale for the evaluation of the restless legs syndrome
Time frame: Change between the baseline - T0 (before the intervention) and 1 month after the end of the intervention (T1)
Six minute walking test (6MWT)
An exercise test used to assess aerobic capacity and endurance
Time frame: Change between the baseline - T0 (before the intervention) and 1 month after the end of the intervention (T1)
Hospital Anxiety and Depression Scale (HADS)
A self-assessment scale for detecting states of depression and anxiety
Time frame: Change between the baseline - T0 (before the intervention) and 1 month after the end of the intervention (T1)
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