Psycho-social Impact of Amelogenesis and Dentinogenesis Imperfecta

University Hospital, Toulouse87 enrolled

Overview

The purpose of this research is to study the impact of dentinogenesis (DI) and amelogenesis (AI) imperfecta on oral quality of life, exposure to bullying and dental anxiety in a population of adolescents. WThe present study will use validated scales to evaluate the impact of bullying on the oral quality of live of youth aged 10 to 18 years, with non-syndromic DI or AI treated in seven national competence or reference centers in rare oral diseases.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Dentinogenesis Imperfecta Amelogenesis Imperfecta

Interventions

QuestionnairesOTHER

For youth: self-reported questionnaires (on oral quality of life, bullying and cyberbullying, dental anxiety) and routine clinical examination for adolescents. For one parent: self-reported questionnaires (on perceived oral quality of life of their child and on their own dental anxiety).

Eligibility

Sex: ALLMin age: 10 YearsMax age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * be between 10 and 18 years of age, * consult for a care or follow-up consultation * having a non-syndromic amelogenesis imperfecta or dentinogenesis imperfecta * having access to a cell phone and/or tablet and/or personal or family computer * covered by the social security of one of his parents * understand French and one of whose parents (or legal representative) understands French * have declared his or her non-opposition and one of whose parents (or legal representative) has declared his or her non-opposition to participate in the study. Exclusion Criteria: * Child presenting for diagnostic consultation and child who cannot read or whose 2 parents (legal representatives) cannot read

Locations (7)

CHU de Bordeaux

Bordeaux, France

Hospices Civils de Lyon

Lyon, France

AP-HM

Marseille, France

CHU de Nantes

Nantes, France

Outcomes

Primary Outcomes

Child Oral Health Impact Profile (COHIP)

Difference between the average total COHIP questionnaire score of bullied and non bullied patients at D0 (no follow up is planned). A youth is considered bullied if he or she answers "three or more" at least once on the Bullying and Cyberbullying scale for Adolescent questionnaire)

Time frame: Baseline

Data from ClinicalTrials.gov

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