Implementing a Family Caregiver Checklist in Primary Care: A Pilot Study

Weill Medical College of Cornell University113 enrolled

Overview

The goal of this project is to pilot test CHEC (Collaborative Healthcare Encounters with Caregivers) in primary care. CHEC is brief intervention with two components: 1) a checklist to identify the needs and concerns of unpaid/family caregivers who accompany older patients (aged 65+) to their primary care visits and 2) accompanying Tip Sheet for clinicians.

Study Type

INTERVENTIONAL

Allocation

RANDOMIZED

Purpose

SCREENING

Masking

NONE

Enrollment

113

Conditions

Caregiver Burnout

Interventions

Collaborative Healthcare Encounters with Caregivers (CHEC)BEHAVIORAL

CHEC is a brief checklist designed to identify family caregivers' unmet needs and concerns.

Usual CareBEHAVIORAL

Attendance at primary care appointments as usual.

Eligibility

Sex: ALLMin age: 21 YearsMax age: 89 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: Patients * Age 65-89 * English speaking * Women and men * Of varying race/ethnicity * Accompanied to primary care visits at the Center on Aging by a family caregiver (family caregiver also consents to participating in this study) * Sufficient cognitive capacity to consent themselves or through a legal representative Caregivers * Age 21+ * English speaking * Women and men * Of varying race/ethnicity * Accompany an older adult to his or her primary care visits at the Center on Aging (Older adult also consents to participating in this study) * Cognitively intact (on basis of a 6-item cognitive screen) Clinicians * Age 21+ * Women and men * Of varying race/ethnicity * Treat patients at the Center on Aging Exclusion Criteria: * Patients, caregivers, and clinicians that do not meet the inclusion criteria. * Patients and caregivers who are deaf or have hearing impairments that limit their ability to answer telephone queries. * Caregivers who are visually impaired and cannot see well enough to read large print and complete paper-based surveys. * Patients and/or caregivers whose dyad counterpart does not consent to take part in the study (i.e., Patients gives consent and their caregiver does not).

Locations (1)

Weill Cornell Medicine

New York, New York, United States

Outcomes

Primary Outcomes

The Number of Caregivers Who Complete the Checklist

The number of caregivers who complete the checklist

Time frame: Through study completion, up to 1 year

Acceptable Length of CHEC, as Measured by the Number of Caregivers Who Report That the Checklist is an Acceptable Length

Acceptable length of CHEC, as measured by the number of caregivers who report that the checklist is an acceptable length

Time frame: Post intervention, at 1 week

CHEC's Ease of Use, as Measured by the Number of Caregivers Who Report That the Checklist is Easy to Use

CHEC's ease of use, as measured by the number of caregivers who report that the checklist is easy to use

Time frame: Post intervention, at 1 week

CHEC's Helpfulness in Identify Caregivers' Needs, as Measured by the Number of Caregivers Who Report That the Checklist is Helpful in Identifying Their Needs

CHEC's helpfulness in identify caregivers' needs, as measured by the number of caregivers who report that the checklist is helpful in identifying their needs

Time frame: Post intervention, at 1 week

CHEC's Helpfulness in Starting a Conversation With Health Care Providers About Caregivers' Needs, as Measured by the Number of Caregivers Who Report That the Checklist is Helpful in Starting a Conversation With Providers About Their Needs

CHEC's helpfulness in starting a conversation with health care providers about caregivers' needs, as measured by the number of caregivers who report that the checklist is helpful in starting a conversation with providers about their needs

Time frame: Post intervention, at 1 week

Desire to Continue Use, as Measured by the Number Caregivers Who Report That They Desire to Continue Using the Checklist in the Future

Desire to continue use, as measured by the number caregivers who report that they desire to continue using the checklist in the future

Data from ClinicalTrials.gov

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