Exploring Telehealth to Deliver Me & My Wishes During Coronavirus-19

University of Utah17 enrolled

Overview

Due to Coronavirus-19, we are exploring the plausibility of delivering the Me \& My Wishes intervention via telehealth.

Me \& My Wishes are videos of nursing home residents talking about their preferences for care, including four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. Knowing what residents want is essential to staff's ability to provide quality care and can inform family caregivers decision making especially in later stages of life as the resident's cognition declines-a time when family caregivers often feel unprepared. Persons with mild to moderate dementia can accurately express their everyday and end of life preferences, however, stereotypes persist about the decision making abilities of people with dementia that often prevent their involvement in conversations about care. The investigators propose to explore the feasibility of delivering Me \& My Wishes via a telehealth platform.

Study Type

INTERVENTIONAL

Allocation

Purpose

SUPPORTIVE_CARE

Masking

NONE

Enrollment

Conditions

Health Communication

Interventions

Me & My WishesBEHAVIORAL

Me \& My Wishes videos communicate residents' preferences via personalized video recorded conversations. Me \& My Wishes are videos of nursing home residents talking about their preferences for care, and include four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts.

Eligibility

Sex: ALLMin age: 65 Years

Medical Language ↔ Plain English

Resident Inclusion Criteria: * Identified as having Alzheimer's or related dementia * Mild to moderate cognitive impairment (BIMS = 8-15, (MDS C0500) (nursing home residents only) * Makes Self Understood = \<1 (MDS B0700)/present in medical record * Understood By Others = \<1 (MDS B0800)/present in medical record * Reside at the facility at least 2 weeks identified as a long-term resident * Age \>65 years * Speaks English Family Inclusion Criteria: * Speaks English * Willing and able to watch the videos * Willing to complete short surveys. Being unable to attend care conference to view the video (e.g. due to distance) will not exclude family from participating. Staff Inclusion Criteria: * Speaks English * Willing to watch the videos * Willing to complete short surveys Resident Exclusion Criteria: * Limited communication capacity (e.g. aphasia) * Comatose * Cognitively intact * Severe cognitive impairment

Locations (3)

Marquis Forest Grove Post Acute Rehab

Forest Grove, Oregon, United States

Marquis Wilsonville Assisted Living

Wilsonville, Oregon, United States

Mission at Maple Springs

Brigham City, Utah, United States

Outcomes

Primary Outcomes

Feasibility of telehealth-delivered Me & My Wishes

ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better

Time frame: baseline

Feasibility of telehealth-delivered Me & My Wishes

ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better

Time frame: 90 days

Data from ClinicalTrials.gov

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