Evaluation of a Cohort of Patients With Ehlers-Danlos Syndrome Treated With Orthopedic Surgery (SED-eval)

GCS Ramsay Santé pour l'Enseignement et la Recherche200 enrolled

Overview

The aim of this study is to assess the joint involvement (shoulder - ankle - knee - elbow - wrist) in patients with Ehlers-Danlos Syndrome and treated by surgery.

Study Type

OBSERVATIONAL

Enrollment

200

Conditions

Ehlers-Danlos Syndrome

Interventions

A joint functional score based on the affected jointBEHAVIORAL

A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: Shoulder (SSV; QuickDash), Knee (Lysholm tenger), Ankle (EFAS), Elbow and wrist (QuickDash) )

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Patient over 18 years-old suffering from Ehlers-Danlos Syndrome and belonging to the EDS cohort of Raymond Poincaré Hospital in Garches * Patient with joint involvement of the shoulder treated by surgery * Patient with ankle joint damage treated by surgery * Patient with joint damage to the knee treated by surgery * Patient with elbow joint damage treated by surgery * Patient with joint involvement of the wrist treated by surgery * Patient affiliated or beneficiary of a social security scheme * Patient who has been informed of the research and does not object to the use of his data. Exclusion Criteria: * Patient objecting to the use of their data

Locations (2)

Clinique Maussins-Nollet

Paris, France

Hôpital Raymond Poincaré

Garches, Île-de-France Region, France

Outcomes

Primary Outcomes

Joint function score according to the affected joint

A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: * Shoulder (SSV; QuickDash),

Time frame: 1 day

Joint function score according to the affected joint

A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: * Knee (Lysholm tenger),

Time frame: 1 day

Joint function score according to the affected joint

A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: * Ankle (EFAS),

Time frame: 1 day

Joint function score according to the affected joint

A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: -Elbow and wrist (QuickDash) )

Time frame: 1 day

Data from ClinicalTrials.gov

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