The main aims of the study are to learn about the percentage of mucopolysaccharidosis type II (MPS II) in adults in Brazil as well as about the diagnosis process. No study medicines will be provided to participants in this study. The data available for participants diagnosed with MPS II in DATASUS (a database of the Informatics Department of Brazilian Health System) will be reviewed. No clinic visits will be required as part of participation in this study.
Study Type
OBSERVATIONAL
Enrollment
250
This is a non-interventional study.
Takeda Distribuidora Ltda
São Paulo, Brazil
Number of Participants Diagnosed With MPS II
Number of participants diagnosed with MPS II will be reported based on the retrospective data of participants collected from the database (DATASUS).
Time frame: From January 1, 2008 to September 30, 2020
Number of Participants with Comorbidities Associated with MPS II
Comorbidities will be like respiratory infections, carpal tunnel syndrome and hernia. Number of participants with comorbidities associated with MPSII will be reported based on the retrospective data of participants collected from the database (DATASUS).
Time frame: From January 1, 2008 to September 30, 2020
Age of MPS II Diagnosis
Age of MPS II diagnosis will be calculated from the date of birth and date of diagnosis. Retrospective data of participants will be collected from the database (DATASUS).
Time frame: From January 1, 2008 to September 30, 2020
Number of Health Care Professionals Who Diagnosed MPS II
Number of health care professionals who diagnosed the MPS II will be reported based on the retrospective data of participants collected from the database (DATASUS).
Time frame: From January 1, 2008 to September 30, 2020
Number of Health Care Professionals Consulted
Number of health care professionals consulted before MPS II diagnosis will be reported based on the retrospective data of participants collected from the database (DATASUS).
Time frame: From January 1, 2008 to September 30, 2020
Time to MPS II Diagnoses
Time between first Unified Health System (a Brazilian Health System) consultation and MPS II diagnosis will be reported based on the retrospective data of participants collected from the database (DATASUS).
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Time frame: From January 1, 2008 to September 30, 2020
Time Between MPS Diagnosis II and Start of Treatment
Time between MPS diagnosis II and start of treatment will be reported based on the retrospective data of participants collected from the database (DATASUS).
Time frame: From January 1, 2008 to September 30, 2020
Number of Treatments Received Before and After MPS II Diagnosis
Number of treatments received by participant before and after MPS II diagnosis will be reported based on the retrospective data of participants collected from the database (DATASUS).
Time frame: From January 1, 2008 to September 30, 2020