Turkish Adaptation of the Activity Limitations in Cerebral Palsy Questionnaire

Izmir Katip Celebi University89 enrolled

Overview

This study aimed to make the Turkish adaptation of ACTIVLIM-CP and to examine its psychometric properties. Eighty-nine individuals with CP, aged between 2-18 years were included in the study. PEDİ, ABILOCO-Kids, and ABILHAND-Kids scores and Wee-FIM questionnaires were used for validity analysis. Test re-test method was used for reliability.

Cerebral Palsy (CP) is a clinical picture with permanent disorders of the development of movement and posture whether assessing activity limitations matters. This study aimed to make the Turkish adaptation of ACTIVLIM-CP and to examine its psychometric properties. The internal consistency of the scale was evaluated using Cronbach's alpha value and the inter-measurement reliability using the intraclass correlation coefficient (ICC). In construct validity analysis; ACTIVLIM-CP score; was correlated with PEDİ, ABILOCO-Kids, and ABILHAND-Kids scores and Wee-FIM total scores. A known group comparison was made according to ambulation and epilepsy existence with the Principal Components Explanatory Factor Analysis.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Activity, Motor Cerebral Palsy Limitation, Mobility

Interventions

Activity Limitation AssessmentOTHER

The ACTIVLIM-CP scale evaluates the global activity performance and combined movements of the body.

Eligibility

Sex: ALLMin age: 2 YearsMax age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * children with CP who were diagnosed by a child neurologist * having physical therapy sessions at special education and rehabilitation center * age between 2 and 18 Exclusion Criteria: * whose parent was illiterate or doesn't speak Turkish * whose parent wasn't complete the questionnaires

Locations (1)

İlknur Naz Gürşan

Izmir, Turkey (Türkiye)

Outcomes

Primary Outcomes

Global Activity Performance assessment

ACTIVLIM-CP: Caregiver rates the difficulty degree of 43 activities easy/difficult/impossible/unknown). Questionnaire scores between 0 and 86 points. A higher score shows better activity performance

Time frame: 15 minutes

Secondary Outcomes

Gunctional capabilities and limitations

Gross Motor Function Classification System: It classifies the motor function of a child from level 1 (slightly affected) to level 5 (severely affected)

Time frame: 5 minutes

Functional independence measurement

Functional Independence Measure for Children: The scale includes 18 measurement items and every item scores between 1 -7. A higher score shows more independence

Time frame: 15 minutes

Child's ability to walk assessment

Abiloco-Kids: It consists of 10 questions for evaluating the walking performance from the viewpoint of the caregiver. Questionnaire scores between 0 and 20 points. A higher score shows better activity performance

Time frame: 10 minutes

child's manual ability assessment

Abilhand-Kids: It consists of 21 questions to measure the manual ability from the viewpoint of the family. Questionnaire scores between 0 and 42 points. A higher score shows better activity performance.

Time frame: 15 minutes

Functional assessment

Pediatric Evaluation of Disability Inventory (PEDI): It consists of three Functional Skills Scales, three Caregiver Assistance Scales, and three Modification Scales in the content areas of self-care, mobility, and social function. Functional Skills has 197 items and each item scores as 1(able) and 2(unable), Caregiver Assistance scores between 0(dependent) -5(independent) and Modifications assessing with frequencies .

Data from ClinicalTrials.gov

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