Many studies have shown Childhood Cancer Survivors (CCS) are ill-informed about long-term follow-up (LTFU). Massive open online courses (MOOCs) could easily allow a deployment at an international level and make reliable information available for all CCS, wherever they live. The MOOC team (specialists of LTFU care, communication professionals and CCS associations), bringing together nearly 130 people, designed a MOOC named "Childhood Cancer, Living Well, After" including three modules addressing transversal issues (lifestyle, psychological support, fertility problems) and eight modules covering organ-specific problems.
Detailed data on childhood cancer treatments were used during a study of feasibility in spring 2020 to allocate specific modules to each participant. The aim of the present study is to quantify the impact of this MOOC on the CCS knowledge about LTFU adapted to their own medical history, but also to measure how this MOOC can improve the LTFU care of each CCS.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
OTHER
Masking
NONE
Enrollment
532
Registrants will be offered a personalized e-education consisting of 3 to 11 modules adapted to the treatment received in childhood by each in the form of a MOOC entitled "Cancer in childhood, living well after" over a total duration of about 3 to 7 weeks of training.
Patients will be followed up until 18 months only
CHU de SAINT-ETIENNE
Saint-Etienne, France
Proportions of former patients with overall adherence to their recommended care pathway.
The impact of the MOOC will be measured qualitatively by comparing the two groups "with MOOC" and "without MOOC" of the proportions of former patients with an overall adherence to the care pathway recommended to them.
Time frame: MONTH 18
Level of knowledge of former patients on recommended care pathway.
The quiz concerns 3 modules : "Taking care of yourself after childhood cancer," "Feeling good about yourself, feeling good about yourself," and "Fertility: talking about it!". Global score = 300. For each of the 8 specific modules assigned in a personalized way according to the former patients, the average score of the corresponding quiz, also presented in the form of a percentage of correct answers.
Time frame: Month 18
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